Tears

6:18pm

It's teatime and there are tears. 

This isn't unusual. Wriggles' aversion to feeding has often distressed her to the point of tears in the past. I have long learnt that if this reaction is even hinted at, to chalk it up to experience and leave it for another go later. Somethings are just not worth it if that are that bad.

What is unusual is that today the tears are from me: I am crying.

But not from frustration.

Wriggles has just put a vegetable finger to her mouth.

No wait, she has put it in her mouth.

And...

I hold my breath, almost too hesitant to get my hopes up.

...bitten, chewed and swallowed! 

Tentatively, over about an half an hour, she returned again and again to nibble away at the vegetable finger. What was even more incredible than this* was the fact that when she couldn't cope with a texture, like a whole piece of sweetcorn, rather than gag and vomit like she has always done, she moved it around her mouth until she could spit it out. I was amazed at this sudden leap in process than I have been waiting for for what is now over a year. To actually willingly handle food, put it to her face, try some, repeatedly try it and use her oral motor skills to break it down... it is so simple and what we take for granted, but it is such PROGRESS and even thinking about it now brings a lump of pride to my throat. 

The past year has been a rollercoaster and has taught me a lot in patience and acceptance and I must admit, there were times like in recurrent weeks whereby she would not even go near food, where I fear it would never happen and we would succumb to tube feeding. I have a small section of baby and children books on my bookshelf that have taunted me with their weaning guides and food ideas. Before Wriggles came home and long before weaning, I devoured them soaking up ideas and formulating my own plans. I talked to the neonatal nurses about weaning premature babies and read the Bliss literature. I couldn't wait and had a box of food items and accessories before she even reached term. I did not forsee  a fraught period whereby she wouldn't even entertain being near food or touch cutlery; I didn't know the work that would be to break down her fear or distate for the sensory textures. Slowly, we have introduced milestone after milestone and now, a taste and management of "real food" is the icing on a cake. I'm not expecting miracles; it might not even be the beginning of the end of this time, but I am so pleased for her.

 I am so proud of my clever baby girl.

"What's all the fuss?"

*if you have never read anything here before, Wriggles has struggled with oral aversion and building up trust never mind a variety has been a very long slow process. In over a year, we are now at an albeit limited, "stage two" of the weaning process!

My Little Princess

I don't think Wriggles is particularly patriotic. She consented to wearing a red-white-and-blue dress (it was one of the only clean items of clothing) but this photograph captured the split second before she threw her crown, lovingly hastily cut out from cardboard and stapled, on the ground and promptly sat on it.

I am not normally very patriotic or royalist. Normally I am a bit on the cynical Scrooge glass-half-empty side of the table, but since having Wriggles I have lightened my mood and taken pleasure in the small things. One of which, is people being nice to each other. Actually, maybe that is not a small thing. There are some very depressing things out there and some very aggressive events, so when a community or group of relative strangers get together for the day and bake cakes free of charge and swap stories, it is really rather magical and refreshing. It might all sound a bit twee, but having gone to a street party this weekend I am fully signed up to the Nice People club.

My parents and grandparents have long lamented the loss of community, and despite growing up in a relatively small, quiet and pleasant village, I can't say I have many memories or much notion of community. I am ashamed to say, I don't know the names of one set of my neighbours and can count the number of conversations had with with on one hand. Community seems rather lost in today, at least where I live in a city suburb. So it was a wonderful surprise to see a street filled with people making merry, with all ages represented and even sulky teenagers looking marginally less sulky for the day. Families, singletons, friends, strangers...there were all there and all sharing together. 

Now that is something to remember.

22/52 Spot the Culprit

Watch out Picasso

Highchair

A year ago we got our highchair. Like much else about Wriggles, prematurely! She was being weaned (if you can call it that, not actually eating any solid food) but even with the insert, was very small and her chin was practically resting on the table. She also couldn't sit up by herself and wouldn't for around 6 months more. The only reason I bought it then was that it was reduced at the time and my parents were up visiting to help carry it back from the shop. We duly placed Wriggles in it for a photo opportunity and after that, it stayed rather unused taking up a corner of the kitchen for months to come. She wasn't very impressed at all and it seldom got used as anything further than somewhere for dumping things organising post.

Wriggles was still being (attempted) fed in the bouncy chair and Bumbo, which I cannot praise enough. We were kindly loaned it by the physiotherapy team to help Wriggles' core muscles, but it really came into it's own for so much more. She seemed frightened of the highchair for a very long time, but trusted the Bumbo which she was always more than happy to sit in. I think it made her feel more independent and like she could achieve more. It also freed up her hands rather than trying to balance on the floor trying to support her weight sitting. I did try to use the highchair briefly, not for food but to play in. Partly it was useful if I needed to have both hands free for a short period, and partly I wanted her to relax in it and learn to trust it. She was so swamped in it, there were often about three separate rolled up towels supporting her as well as a booster insert. Slowly, she began to hate it a bit less and discovered the fantastic game of "chuck it over the sides/Mummy pick it up". She was definitely at least one before it got used even semi-regularly for meal times, as other times she was far happier sat in the Bumbo or on my lap. Given that meal times were not her favourite bit of the day, the last thing I wanted to do was make her more fraught by the choice of seat.  


Although progress isn't fast, Wriggles really is making strides with feeding and also accepting more textures and touch. The highchair has now come into it's own, especially as the Bumbo is no longer safe now she is mobile, and the tray is ideal for presenting a buffet of leftovers and finger foods, and if she wants to really get involved and explore the food, then it is wipe-clean (as is she!). Now, we have lunch and dinner in the highchair and she happily will pick through a selection of things like cheese biscuits and Cheerios as well as being spoon-fed. It also makes a good hiding place, standing aide and toy basket when not in use. She still is rather swamped by it...

Happy birthday, highchair.

All in the Mind

The human mind is incredible.

 

It is such a sophisticated thing and the most sophisticated thing is, you can't even see it. You can see the brain yes, and really clever people with whizzy machines might be able to see cells and neurons but what does our mind, our thoughts, our intellect and personality look like? Does it look different if we are ill or sad?

Mostly, the mind is incredibly clever and benevolent.

Sometimes it is also incredibly cruel.

You only have to turn on the news to see what human thinking and consequently actions cause sometimes. It might be one person or a collective. It might be one spark or a long thought out plan. And less newsworthy, people out there every day struggle with mental health when their mind is not 100% their own. It might be fleeting; it might be lifelong.

After my recent wobble, I have been feeling so much better for having some time off work with Wriggles. It really helped me reaffirm myself as Alpha Mama (alright, then: a mama at least) and in that month, I did more mum-friendly and social things than I had in over a year. I returned to work as I knew then that redundancy was imminent in around 6 weeks and figured that I could do that, knowing there was an end. I hadn't given up the idea of continuing working if something else came up and I could find appropriate childcare and I was getting maybe a little cocky thinking I had put the worst behind me. Largely, I think the "worst" is behind, just the tough bit that is easy to forget is that there is no magic moment when your feelings go away in a puff of smoke. Nothing has to happen for them to creep back out again from where they have been lurking, but sometimes they sneak up unexpected and uninvited as if to remind you who was once boss.

I had a silly hour or so today. It wasn't quite a panic attack, but was unsettling to say the least. I had a rare few hours apart from Wriggles; we had a lovely lunch together (eaten: one fromage frais, a dollop of banana & custard, several rice cakes, the corner of my panini and some multigrain hoop-type-snacks) and I dropped her off at the creche. She barely looked up, having befriended one of the staff instantly. I kissed her, once, twice, needily three times and still she didn't flinch. Off I slunk, with my tail between my legs and my metaphorical ears wilting.

She doesn't love you.

The thought hovered in my head. I furiously brushed it aside.

She doesn't care.

She's just independent. And sociable and friendly and a toddler for chrissakes. They all go through mad phases.

You keep telling yourself that. How do you even know she realises you're her mother?

All babies know their mothers. She would have known my voice, my smell. She settled with me and fell asleep in my arms.

She was born early not long after developing those senses and lived in a plastic box for two months.

That didn't stop me loving her and telling her I loved her. And once she came out and came home, I didn't stop holding her and being as mothering as I could.

I'm not talking about what you feel. She wouldn't care if you walked away now. If you went and never came back. She'd be fine. She'd still smile and giggle and laugh. How do you know she would miss you?

How do you know?

Would she?

I wish sometimes there was an off-button to silence minds.

As anxiety and growing hysteria with a growing conviction I was unwanted swept over me, I could feel myself getting light headed and shaky. Walking past a window confirmed I was as white as sheet and looked peaky to say the least. I honestly thought I was going to collapse with the intensity and was terrified that after all the good work of being able to separate mad brain from normal brain that I was falling back fast into a barren and bleak pit of despair whereby I couldn't control my grasp of my little world.  

Thankfully, my more conscious and rational self came back not long after it had left and banished any such thoughts, focussing firmly on what was happening right that second (wandering round IKEA, a task impossible with a small noisebag) and the knowledge that soon I was going to be back with Wriggles and she would be happy with that.

And indeed, she was. I picked her and smothered her with kisses and she happily held my finger on the metro home. We "fed" her toy cat rice cakes on the way back and she squwarked with mirth. I was once more myself and let out a sigh of relief and contentment. Now, surrounded by my things with my daughter sleeping softly in the next room, I know all is well. 

A blip. 

A silly blip. 

Philosophically, you could debate the notion of love, relationships, parenting, nature and nurture but I know one thing: I have a very happy little girl and happy little girls do not stay happy without love. Little girls who do not care are not full of smiles and contentment. They do not blow kisses or offer to share dribbled-on breadstick. They might scream and try to climb in the bin and ignore all authorative "No"s and happily climb on anyone's lap, but that does not mean indifference or dislike.

I've got so many happy memories with her, and I hope she has too. I know memory is far less sophisticated in the very young, but I hope somewhere in there, there are recollections of moments prized. I'm not, in them by default as the only parent there day in, day out I hope but because I have earned my place and my reward of my daughter's affection as I have loved her to the ends of my ability and further every day, and done the best I possibly can by her. I may not be perfect, but I will bloody well try to be for her sake. (Allowing bin-and-toilet-climbing excluded of course. That will stay not permitted, however many tears it produces).

Uninspired

Dear Bloggy, this last fortnight I have been feeling out of sorts. Not down exactly, just unsettled. I can't put my finger on it: nothing is wrong, and actually I've had some pretty lovely days sitting in the park with the Wriggly one. I've even been unusually social and made an effort with mum and baby friends and been rewarded with fantastic afternoons, company and birthday invitations. I'm finally feeling less of a fraud and more of one of the gang. So what is it? Maybe it's the impending knowledge my job is coming to an end and I've got to fix up and suddenly be a full-time mum on *whispers* benefits. Maybe it's that change is all around, and not always happily. Maybe that time has suddenly flown and somehow I've got a toddler who won't go to bed properly and likes ferreting in the bin. Maybe it's because I am dreadful at religiously taking my anti-depressants. Maybe I shouldn't torture myself watching programmes like Great Ormond Street and reading Call the Midwife, because some of the content is a little too close to home, however interesting it may be. Maybe it's that old favourite hormones. Maybe it Just Is. 
Anyway, while I try and scrape my brain back into my head, here is some of what we have been up to:

How much can I pull off the bookshelf and fling everywhere...?

Practise makes Perfect

Bookworm

Bonding with Talking Teddy (who appears to have short circited and thinks his foot is his hand. No Teddy, no)

"Higher, mama, higher!"

Fright

Yesterday at work, I had one of the more enjoyable tasks I do: filming rehearsals with the dance company for the new piece which is being choreographed. The new production is a telling of favourite fairytale Rapunzel, originally a European folk tale that was collected and retold in the Brothers Grimm book in 1812. There are several variants of the story which pre-date this, including Petrosinella in 1634 and Persinette in 1698 which all have in common the story of a witch stealing or bargaining a dearly wanted child away from her parents and locking her in a tower until a prince finds her and begins to visit her by climbing into her tower from her long hair. 

As a child reading the story, the bit we all focused on was Rapunzel being in the tower and sneaking her prince in while she falls in love before being banished by the evil witch: the stuff of drama and romance. As a more mature understanding, it is quite a complex story and there are more illicit and darker undertones. In many variations of Rapunzel, she is banished because she has become pregnant herself, which is how the witch or Dame Gothel figure finds out about the nimble-footed prince. It is as much about desire, sexuality and fertility as it is about princes and princesses and good conquering evil. But before this section of the tale, is the beginning whereby Rapunzel leaves her parents, which before I had never given much of a second thought to. Of course, it is just a fairy tale and has no basis in reality, but it is powerful the notion of parents giving up their child in any form, fictitious or otherwise. As I watched, I thought and reflected as a mother on how it might be to have my only child snatched by a sorceress (as you do). A lump rose in my throat-as a parent who has been through NICU I know all too well about separation and the fear that you may never get your happy ending. The idea that I might have lost the sunshine in my life made my pulse race and my thoughts strayed to real life parents who for many assorted reasons have either been separated from or lost their children.

The studio was warm and the dance was entrancing and emotive, and I happily sat with the camcorder in the corner when my manager walked in. She came over and said in a low voice.

"Your childminder has just rang; she's concerned about Wriggles."

My childminder never rings.

She has only rung about once before in over a year she has looked after Wriggles. She has a remarkably high threshold for sick or cross babies and is full of common sense and does not take things like this lightly. She will exhaust every avenue before ringing.

My little world suddenly slowed down and came to an abrupt stop.

I ran up to the office, stubbing my toe on the way out. Pelted up the stairs and shaking, scrabbled to find the phone and her telephone number. My hands fluttered and my heart was in my mouth as it rang.
Wriggles had had one her "moments" again. No one is quite sure what causes them, but every now and then she will get horrendous and prolonged coughing fits out of nowhere and become very breathless and chesty sounding. You can audibly hear copious amounts of secretions rattling around (mostly transmitted upper respiratory although they can also be lower respiratory too, particularly in her right lung which is the most scarred) and her breathing becomes very rapid with recession. Sometimes if she makes herself sick, they pass quicker but this is by no means a given, and it is usual for them to last several hours at a time. Although they have some similarities with asthma attacks, doctors are confident that it is not asthma. To me they seem to be connected to sleeping or feeding and the doctors have said it may be a side effect of reflux and chronic lung disease that hopefully she will grow out of in time. It could also be as her airways are still very narrow as a result of prematurity that any catarrh can block them very easily.


I left as quickly as I could, losing one sock in the process (later located in handbag: no idea how). Wriggles was calming when I got to her but still very chesty and breathing fast. She had not been able to take any fluids to help because of the coughing and chestiness and as I was nearer to the doctors than hospital I decided to cross my fingers and take her there and hope it was the right decision. Luckily it was, and we got to see a doctor who has seen these episodes before with Wriggles. It was beginning to pass after about two hours by the time we saw him: typical! He was very understanding though and found an ear infection and catarrh as well as advising use of inhalers and antibiotics for the next few days. Panic over... We returned home via the supermarket with some ice cream as a treat.

Wriggles went off to bed with some persuasion and I let out a long breath. Compared to some of Wriggles' escapades it was so minor. But there is nothing like reawakening fear to put you on high alert and dredge up memories and anxiety. Having seen some pretty horrible sights of Wriggles being on the edge that are burnt into my memory, every tiny and slightest threat brings them back to the forefront. Do I think that Wriggles having an increased work of breathing for a few hours will send us to Intensive Care? No, I do not. I know what merits an ambulance and an emergency and what merits scanning the shelves at Boots. I don't automatically assume that every single infection is life threatening. But living with memories is a curse as well as a blessing. Because for a split second, fear overpowers love and knowledge and you realise that you cannot ultimately protect your child from everything, try as you might. And that, is scary.

21/52