Bright as a Button

Yesterday we had an excellent and slightly rare meeting.

Before Christmas we had a review with SALT (speech and language therapist) who ended it with "I'm not really concerned but....*trots out not one but two further referrals concerning lack of speech*". I was left thinking, jesus woman, just SAY IT-it's alright, I had actually noticed that most two and bit years olds have more than about 10 words on a really good day and thus things weren't running as smoothly as they could! It really frustrates me when people try and sugar coat things before ramming another thing through that just highlights you're in a pickle. I know they do it not to scare you silly and set off  the presence of the almighty (and frequently wrong) Dr Google, but then what actually happens is that you just get a bigger unpleasant shock when surprise, surprise, the next blunt-er professional you see says, "Do you know your child is delayed ...*insert delay shocker here* months?".

So anyway, we were referred to one speech parent & child group and also to the Early Years Support team, who are similar to portage. We are still waiting to the former as there is a waiting list and we had the latter meeting yesterday. It went better than I had hoped. Essentially, it was a play assessment to judge Wriggles' maturity through play and catch a glimpse of what amounts to her learning abilities and to get an idea of her intellectual capacity. Although speech does come into it, it helps to know if you're looking at a child with delay in all areas e.g. immature speech and some cognitive delay or immature speech on it's own. I was fairly confident that Wriggles is more or less on track cognitively and definitely for corrected age; then again I think the sun shines out of her arse so am probably not the best objective judge. 

The meeting was off to a good start when H, the EYS (Early Years Support) worker said Wriggles' reputation had preceded her and she has heard for months from her colleagues who know Wriggles through physio and Splish, Splash, Bounce that Wriggles is simply a sunny delight encased in a mad toddler. Cue first proud mum moment. Together with our SALT, we sat and watched and interacted with Wriggles playing around the room as well as vaguely discussing her history, what else is going on health-wise for her, future plans for nurseries and her communication boundaries. Pretty quickly, H said she felt that there was very little they could do from a referral point of view right now. Wriggles was clearly "as bright as a button" (second proud mum moment) and was demonstrating a good overview of play, both independent and social and seemed to have a good grasp of concepts, problem solving and memory. She did discuss with our SALT, C, about possibly referring us to a group of children with language delay just on single words (definitely us. I will fall over with surprise when Wriggles strings words together) but after the pair of them talked about it, it was decided that although that fits Wriggles' language needs, unlike the rest of the children currently in the group she doesn't have the cognitive delay also, so H felt the group would not push her enough as she needs appropriate input to facilitate speech. 

What this all essentially means, and the main thing that came out the meeting, is that when we come to looking at playgroups, nurseries and school we are looking at going into mainstream establishments. We will stay on EYS books so that when the time comes they can help us pick the most appropriate places and broker any meetings, alongside physio and the community nursing team. Depending on progress, it will need to be liaised to ensure it is a setting compliant with Wriggles' physical needs (which physio would mange, maybe by providing a walker or other mobility aid and possibly some assistance at times) and also a place supportive of Makaton and BSL signing as this still plays a big part in our lives and routine. I had worried that the physical and language delay might hold her back, and in one way it does. I have noticed, in her correct peer group, Wriggles does get left out physically because she hasn't the ability to run off, jump, move around in great strides-she is reliant on someone or something to move her. In a slightly younger group, it is still an issue but less so as slightly younger children don't bat an eyelid about crawling around or having a mum-walker whereas already I have seen 2- and almost 3 year olds 'baby' Wriggles in group situations because she seems at first glance, slightly more babyish in her movements or exchange of communication. But in another way, this meeting affirmed what I hoped to be true, that despite having some extra hurdles to overcome, Wriggles, possibly with some extra support and the right setting, should be able to settle nicely in her peer group and not just cope but thrive. H noted that through play, even though she doesn't have the speech currently, Wriggles demonstrated enough understanding and interest to be more than able to "join in" even in a less vocal capacity. Of course this is very early days, we haven't tried an educational setting yet and there is the whole other issue of needing feeding and a few sensory quirks Wriggles has. But one step at a time.

Because right now, I'm doing a jig on the moon and no-one can spoil it!*

This is possibly the first time we have had a meeting and not come out with another referral or after having another issue flagged up.

This is a great step when professionals note down Wriggles positives as well as problems.

This is one of the first times, if not the first time, I have come out thinking maybe, I am doing something right after all. Maybe I haven't buggered things up for her by either prematurity (thanks a bunch, womb), my own struggles with my mental health or by not being super mum with a play date here, an award winning toddler group there, French lessons, baby yoga, yadda yadda yadda. 

This is a moment I will savour and remember next time some ignoramus says "So, isn't she walking or talking yet? Why?". 

We might not have left behind prematurity or medical needs, but it is so nice to celebrate something for a change with those who oversee her development. And by the way, "nice" doesn't even do it justice. It is EPIC.




*don't you dare. Let me have my minute!

Rain rain go away

I cannot begin to tell you how fed up I am with this rain. Except that if you live in the UK too, chances are you share my feelings and are busy with the same sentiment. The trouble I have is a simple equation:

Heavy rain + cooped up toddler = Not Very Good

Toddlers, need entertaining. Toddlers like variety. Toddlers like destruction and space to roam. Mummies do not like getting wet. Thus, being stuck inside the house is a nightmare that will often result in two people climbing the walls by 4:45pm. After a while, you run out of producing tricks, your voice goes hoarse from singing Wind the Bobbin Up a little too enthusiastically at first not anticipating how many times it would have to be repeated, there is nothing actually left in a drawer or cupboard, all the crayons have gone missed (lobbed God knows where) and every new and exciting (really!!) activity is met me snarls of defiance and lunging for the remote/telephone/bread knife/plug sockets/bin.

"Helping" address a card

Bookworm at home ravaging the shelves

In good weather, I have tricks up my sleeve. Namely ducks, pigs, the seaside, the playground, picnics outside, drawing on the path with chalk...I know, I do have ENORMOUS sleeves. In torrential floods, I must admit I am stumped. There is only so many times you can haunt soft play before you either go bankrupt or mad, and the great problem is getting anywhere in lashing monsoons. Yesterday we braved it and dashed out to toddler group which is all of five minutes walk away. Today, after miserably watching the drizzle we seized the moment and decided to go and bother the quiet literary types at the City Library. Luckily everyone else had the same idea and there wasn't a single literary type in sight. Instead there were some small children full of beans, what looked suspiciously like a great thong of the Unwashed talking earnestly about dragons and dungeons and taking up all the tables with their special tablecloths and lanky anaemic looking limbs, and several elderly ladies asking about Fifty Shades of Grey.

Our City Library is now huge. It has six floors including a nursery and creche, exhibition space, gigantic paper mache tiger, permanently shut job seekers advice (how fitting in this climate!) and a severe lack of books. It is very clean and modern, but does bear a minor resemblance more to a shopping centre or empty airport lounge as opposed to a centre of learning. Luckily it does contain children's books and a small area to amuse said small children. There is a rather exciting pretend tree and a huge print covering both a wall and curtains of clouds in the sky, so you can pretend you are outdoors. A bonus for us today, was there were some wide steps leading up to this. At the weekend, my friend decided her honorary aunt duty was to teach Wriggles how to climb up stairs. In just under an hour, Wriggles went from clumsily scrambling over legs to being able to shimmy up a lengthy and steep flight of stairs without a second glance. So being able to practise this new skill was a winner as far as she was concerned!

Mastering the stairs

Wriggles by name, Wriggles by nature

 As it was in the same building, we were able to call by the nursery Wriggles had temporarily been in whilst I finished work after our poor childminder had had to bring her retirement forward drastically. Due to our recent hospital admission, Wriggles had missed her last day so it was a lovely opportunity to say thank you and pick up anything she had left. Although she hadn't been there long, she had been assigned a key worker and had a folder full of 'drawings', observations, photographs of what she had been up to and descriptions of how her days there were filled. It is not just a lovely record to keep, but was also somewhat of a relief reading through the notes especially those in reference to the EYFS framework and child development. Although we know she has delays, and has been officially marked down now as globally delayed, the observations were glowing with her skills and it was clear that those partaking in her care were every bit as chuffed as I was every time she did something new. She may seem young for her age, but she is very much getting there and it was with both pride and pleasure that I noticed she is ticking many of the boxes for 8-20 month old development in social, cognitive, personal care, language and gross/fine motor skills. The speech and walking may be missing, but she is quite adept at communicating her needs, charming the pants off making relationships on her own terms and getting around to her wishes. I knew at home she was beginning to grasp the concept that things have uses but this made me laugh:

"....Wriggles was exploring the (toy!) mop, turning it upside down. Earlier in the day, she found the sweeping brush and proceeded to attempt to try and manipulate it to 'clean' the floor and also then to brush her hair."

I must admit, the idea of my Wriggles, who if she didn't look less baby-like by the day could easily pass for 10-11 month old, wrestling with a full-sized sweeping brush and attempting to comb her hair with it made me snort out loud. 

That aside though, the report was full of positivity and it will certainly be accompanying us to our next development review. It backs up what I have always thought and said, in many areas she is going at full steam ahead and what some areas may lack in, others such as social skills and confidence, she more than makes up in. One horrible review now months ago, it was implied that by being from a single parent background, she wouldn't be able to be brought on as much as a child from a more traditional background. I was told that unless she went quite substantially to nursery among lots of children, she would flounder. Yes, these recent observations have been made in a nursery setting now (albeit a very small indeed one), but she has clearly managed perfectly well to get this far with so much character by either being with me, or the childminder who only had one other little person one day a week. There might only be two of us, but since that stinging remark I have been determined to make sure we socialise and go to lots of activities in groups and see lots of friends to widen her circle. And it looks like it is working! She is not even 2 yet, so even on a purely hypothetical level as finances would not allow any nursery, I am not comfortable with having her away from me unnecessarily. She is a bright button and unless we become hermits, I refuse to believe her development will be harmed in any way by not rigidly following guidelines in a large group of peers.

Now if that rain can just stop for one minute to be able to get out and socialise....

Dear NICU

Dear NICU,

I am angry. So angry. I know I shouldn't be but there are so many things I want to say to you. Maybe it's not healthy nearly 2 years on but I need to get this off my chest.

You denied me my role of motherhood. You took away my basic rights as a parent. You can SAY I'm still the mum, but how was I really being a mum just sitting? Sitting and staring. Watching and waiting. That's not parenting.

Do you know how demeaning it is to ask for permission to touch my baby? Not even hold, but touch? And when told, albeit gently, no not now, no not today, how you snapped my fragile heart and stamped over it before brushing it aside for dead.

How patronising and sad it is to have cuddles put on a rota, as if it was another chore to tick off. 15 minutes a day; 3pm after cares.

How I felt as small as a gnat, no smaller, as worthless as a flea because I wasn't breastfeeding. I couldn't even do that and you didn't care. You didn't even say, don't worry because it wasn't important as long as my child grew.

You smashed every one of my dreams and preconceptions of my first child, my baby I will never ever recover or now live. My innocence was lost within hours. It doesn't matter if I go on to have another baby; I will never get those hours back with her.

You were rubbish at sharing. All those weeks and I could only visit. Every night I had to leave. Every night I had to leave my baby with someone else. Someone very kind and very skilled but a stranger. Every night I had to accept that someone else would comfort my baby because I couldn't be there to do it, and might get to hold her precious hands while I wasn't allowed.

You had the most important job in the world looking after tiny vulnerable beings that were each the centre of someone's universe and yet you had no compassion. Day in day out some babies would get sick. Worse, some might leave this earth. Why didn't you do something? Something more?

You weren't me. You might have cared for my baby but you will never love her and you took her from me when she needed love the most.

Kind regards,

but maybe not that kind,

Mouse

ps. By the way, thanks for y'know, saving my baby's life and looking after her. Thanks for giving her the chance to live so we could both be happy today. More than happy. Um. Maybe you could just ignore all of the above?

*screws letter up and throws it in the bin*

Sigh.

Excuses

Of late, I haven't been blogging so much. Or rather, I haven't been posting as much. I have started writing most nights, but either words or paragraphs in, something pulls me back and I press delete or mark it in my drafts folder, which realistically never comes out again. It's not that anything particular has happened or gone wrong, I've just felt a bit "meh". After my month off work, I felt so much more settled and on top of the world. Since returning to work and accepting redundancy, I have been, to put it politely, all over the place and a bit sorry for myself. Partly, a parade of bugs that are never quite bad enough to keep either of us at home hasn't helped and neither has Wriggles' sudden toddlerdom of tantrum throwing or sleep regression!

When I started this blog, after reading others that either amused or inspired me, it was for me to use both as therapy to get over the bad memories and to make good memories. When it started, Wriggles barely ate and we had spent about four months constantly in and out of hospital between which I would go to work...only to be in hospital with Wriggles the day after or sometimes, hours. However, things were showing signs of improvement and I was hopeful that our journey might be looking more straightforward. Quite quickly, it became apparent this wasn't too be the case. Although things have been up and down since coming out of NICU, I've always been very aware how things could be more complex, more limiting. But a small part of me, the regular mum bit, not just the ex-neonatal-mum, has also been aware how much simpler things could have been.

My girl?

Plop.

Through the letterbox came the written report of the last appointment at 15 months corrected with the paediatric team which had gone fairly well. They were happy to leave it until around August, just before Wriggles is 2 and seemed content that I was doing all the right things and generally being a Good Mama.

"...at clinic, Wriggles was quite happy playing on the mat and was reluctant to go back to you [me]."

Bang.

Like a dagger to my heart.

Inside I crumpled up again, momentarily back swimming in confusion, hurt and rejection. 

After I got over the initial struggle of NICU coming to terms with my very new, very surprise and very vulnerable little scrap in an incubator, I fell in love. There was never a question over that. The struggle I had was accepting that Wriggles felt anything in return for me. This struggle was a very long one and took many session of counselling, many cuddles and many many months (I would say well over a year) until she started blowing me kisses and hanging onto my leg.

 

Parenting is a very unique relationship that breeds unconditional love from the responsible carer towards their dependents. And it is always assumed that this love, in a different more taken for granted way, is returned by the children. At it's least sentimental, because in most cases, the child knows no other parents and no other love. It is the first relationship, and hopefully most long lasting and simplest yet most complicated they will ever have.


When our minds play with our confidence, cruelly, we question even these most basic facts. Whether she knows what love is, I am Wriggles' constant and the person she is with by far the most. I am there morning, I am there night. I am there in the middle of the night. Just me. Just us. I am there in sickness (either of us) or in health. I am there in good spirits and there in a grump. So knows that. As my friend V pointed out recently while Wriggles was blowing kisses to her, she knows what kisses are and distributes them so freely because we have such an affectionate relationship and to her, kisses are the norm, because she has always got them. What a lovely innocent world.

I know the report was not in any way criticising me or suggesting my daughter is indifferent, or worse, doesn't know who I am. It's my fear shouting over my rationale and that if she didn't know my world of security and comfort, she would be fearful to do any venturing. It's just that my (not so) secret fear is that deep down she doesn't understand who I am, and running on from NICU thinks that the entire world is her family, happy to embrace and be caressed by stranger after stranger taking my place.

When I first discovered the world of blogging, particularly those with a premature baby aspect, one of the most important posts I read was this one by Beadzoid. It very much spoke to me and in my dark moments when I felt very alone, offered a chink of light that someone had had similar worries to me, and if they hadn't been certified then I wouldn't either.  

This week, Wriggles is in temporary childcare; not an ideal situation but a necessary evil as she will only try and eat the printer at work. She has started to cry when I leave and I am told, stand by the stairgate for a while after looking out. It breaks my heart and I smother her with guilty kisses on return. You do care. I'm so sorry I doubted you. I'm not leaving you. I love you. The minute we are home, she scrambles away to explore new worlds and hoot down toilet rolls. Then out of nowhere gives me a big hug or grabs my hand. Then the spell is broken and she is off again, but I am revived.

Oh, to be a parent. You just can't win either way.

Then and Now

Then.

 

I miss looking into your screwed up squished "term" face, seeing glimpses of features yet to come.

I miss your snorting and snuffling through the night: you sounded exactly like a hungry hedgehog in the undergrowth!

I miss being able to be still with you; just watching and waiting for nothing.

I miss your napping, curled up on my chest. Now if you consent or are allowed to sleep on me, you are more lolloping starfish than a little dormouse.

I miss your whole tiny hand being still almost too small to hold just one of my fingers-and I have tiny hands myself.

I miss, in a wierd way, you grabbing my hair and getting tangled up in it. Things I thought I would never say.

I miss putting you down in one place and knowing you will still be there, albeit a bit lopsided in two minutes time!

I miss at least two naps a day.

I miss that utter dependence on me.

Now.

I love it when I carry you around, and you cling on tightly with your fists and wrap your arms around me like a bushbaby.

I love that you have such a personality and a huge range of expressive faces. Even your stuck out bottom lip cracks me up.

I love that you give cuddles back. When you reach out it is The Best. Thing. Ever.

I love it when you try to pull yourself up by pulling on my trouser legs.

I love it when you "bring" me a toy (normally thrusting it up my nose) you want to play with, or better still, want me to play with with you.

I love it when you copy things and do actions. You are so sweet when you hit yourself on the head with a hairbrush ('brushing your hair').

I love seeing you get excited: bet it about the swings, a train, Mr Tumble or coming home after a long day.

I LOVE it when you blow kisses.

I love it when you curl your fingers around mine.

I love that your understanding is growing each day.

I love that you are such a daredevil and scared of nothing (except possibly eating and our friend Leila's hippo torch).

I love it when you are with other little children and I can see you trying to work them out. And then trampling on them-must sort that last bit out.

A Day of Two Halves

If ever there was a day of getting out on the wrong side of bed, today was it. I only have one side of bed, but obviously today it was Wrong. 


I had a rare lie-in until 08:20 (thanks Wriggles!) but awoke in grouch-mode and it got worse and worse. I intended to get ready early and go out before 10 to take Wriggles to soft play before lunch in the hope of tiring her out a bit so she might re-take up napping in the daytime and thus start sleeping a bit more normally at night times. Partly due to the rain and mostly due to my ineptitude, we weren't both ready until gone 11. Wriggles was driving me up the wall, only content to throw everything off my bookshelf constantly ad shriek at me if I dared correct her from reading books upside down (not a deliberate attempt to spoil fun: she can and has for months read them the 'right' way and now her upside-down-and-back-to-front method is very rough, breaks the spine of all the books and thus makes the pages likely to fall out. She has developed superhuman strength and can easily destroy a board book) or suggest that she could do something, anything, other than book flinging either with or without me. I discovered I had missed a series of payments on things so had to do some organising and grovelling which is never nice, and finally wrapped up a parcel to post to a dear friend who is having a baby shower this weekend, which I cannot afford to go to (WHY do airlines charge practically an adult fare for infants who will after all, only be sat on your lap with no luggage?). There wasn't a proper reason for getting cross, especially with Wriggles who after all was only being a toddler, but I found myself getting increasingly wound up and stressed with everything. The washing up pile haunted me, reminding me that I was rubbish at doing things when I knew I should and I felt tired and a bit overwhelmed by just life.

By the time we left, it was pouring down but I could not stand to stay inside. I know from prior experience, being couped up with a full of beans Wriggles in destroy mode is not a recipe for a happy day. We had a nice hour where we go some jobs done, called in on our recently retired childminder who was delighted to see the Wriggly one and had some lunch . Then the trouble brewed again as I tried to persuade the baggy-eyed and yawning child to have a nap. Just five minutes (or preferably twenty if you're asking). She looked sleepy. She has until very recently, had a hour or longer nap after lunch to recharge her batteries. This has suddenly turned into a battle meaning by 5pm she is a whining and exhausted child and bedtime is frankly a miracle when it eventually occurs. We walked around the park. We walked around the park again. We had some top-up milk. We walked around the park some more. In the rain. An hour later, with a very frayed temper I gave up. 

It is very rare I am grumpy with Wriggles or tell her off seriously. I do employ "No!" at appropriate moments ("NO Wriggles do not turn the TV on or off/grab plug sockets/climb onto the toilet/throw your dinner on the floor") but partly I've never really had cause to tell her off and partly I'm terrible at it as I instantly feel terrible. I'm not talking about dodging discipline, but shouting for the sake of a bad or frazzled mood over something that doesn't warrant that level of reprimand. I know it was wrong to snap at her, but snap I did. What with working and managing everything on my own from baby things to finances to the sodding washing up (where, where does it come from!) when it gets to the end of the week, a hard week of sleep regression, a frustrating previous day at work, then to be honest I need Wriggles' nap as much as she does. Just to get fifteen minutes or so to me. Just to sit down without guilt and breathe a sigh of relief. Just to know that the whining will almost-probably be cut out later. Just to have a cup of coffee that is still hot. Just to stop being two parents rolled into one with eyes in the back of my head and enough patience to shame a saint, for a tiny tiny fraction of time. I was cross and I told her off. I'm not proud of it. At all. But it was that or burst into tears. Needless to say, it did nothing. With defeat and now over an hour lost, I gave up and chalked it up to my list of failings and headed into soft play. As I paid the entrance fee, I knew full well that she wouldn't last the two hours it gives you but by now we both needed somewhere neutral and shrieking friendly.


And actually it did the trick. I chilled out and relaxed especially as Wriggles clambered over me. Seeing her cackling away to herself trying to climb the wrong way up the slide reminded me why I love her completely. I helped her perfect her clambering skill, which I suspect I may regret. It was rather hot in there, and as time passed Wriggles began to concern me slightly. She was getting very sweaty and clammy; I removed her t-shirt and clipped her face back. She was still very hot. In horror, I watched a bright rash spread across her arms and chest. It was very red and very spotty. Whether fever or heat rash it was hard to tell. Gradually it faded as I tried to cool her down and my bed time it is as if it had never been there. It is horrible moment though when your heart leaps into your mouth and panic is suddenly everywhere! We came home without even and had a cuddle that put the world, or at least mine, to right.


This week has been a little ray of bliss in terms of Wriggles' feeding. We have tried:

• Mummy's sandwich
• Mummy's cake
• Strips of pitta bread
• Wafers
• A bit of buttered roll 
• A vegetarian sausage 

...which have all gone down relatively well. I'm not talking huge amounts, but just tasting and Wriggles voluntarily putting them in her mouth is such an enormous step. I decided to bite the home cooking bullet today and make some sweet potato chips. To my amazement, as I deposited some on the highchair, Wriggles abandoned the strips of toast she was dribbling on and took one. And put it in her mouth. This was a beautiful moment; it was the first thing I have made she has touched*. Obviously I am delighted she now will try toast and sausages, but was giving up hope of ever being able to nourish her myself! Alright, I know it was just a bit of essentially fried potato. I imagine I could have possibly obtained some from the frozen aisle as the supermarket. But I cooked it. 

It dawned on me that I am enjoying food times with Wriggles. For the last 14 months I have been very much trying to enjoy food times zen to a fine art, but enjoy it? No way. Would you enjoy your offerings refused for months and months? Every day, several times a day no matter what you do with it? Would you enjoy seeing your child make herself sick with distress because she caught sight of a spoon....no not her spoon, your spoon you intend to eat your yoghurt with? Would you enjoy finally revelling in her trust that fromage frais is actually yummy only to see her stomach contents cover the entire kitchen because of one little gag? No, thought not. Live with, yes. Accept, yes. Chill out about, very almost yes. Enjoy? No. But now, now Wriggles is trusting food enough to at least make sensory discovery and her own mind up and at best actually use her oral skills and digest it, now there is variety and her enthusiasm matches my own, now it is fun. Now if she just put on a little bit of weight so I couldn't play the xylophone on her ribs...!

Getting a bit cocky with the "climbing" malarky...

Handbag

Sometimes I wonder how being a mother has changed me day to day. Occasionally I think maybe it hasn't. Obviously I am one, but am I that different? I have always erred on the bumbling and scatty but am I mum-type-bumbling? At work today, my fellow mum-colleague came in and fished in her handbag for a pen. She pulled out several snapped crayons with a puzzled expression and rolled her eyes. I thought about my own attempts to find anything in my bag and there found my answer.

In my handbag this morning I found:

• my wallet (chewed)
• my mobile
• my keys
• my spare keys in case I lost my keys
• my camera
• one either spare or dud battery-must check later
• antibacterial hand gel
• miniature bottle of Burt's Bees lotion
• lipbalm covered in fluff
• assorted crumbs
• crushed packet of Quavers containing approximately two Quavers left
• packet of paracetomal
• Passport; presumably in case it all gets a bit too much
• biro
• spare biro
• spare spare biro (yet can never find a biro at time of need)
• six stacking cups, mercifully still stacked
• one shaky egg
• one board book, cunningly concealed
• a half chewed arm of gingerbread person (chewed by Wriggles, not me)
• hairband
• assortment of expired bus and metro tickets and receipts
• squashed mini packet of wipes
• collection of bangles to distract Wriggles from swiping my keys and spare keys
• dog-eared leaflets I cannot recall picking up
• my friend's address scribbled on the back of a Pizza Express menu
• pair of tiny socks (kicked off by Wriggles)
• Sudocream
• Small bottle of factor 50 sun cream
• sweet wrappers (alas no sweets)
• unposted birthday card for uncle
• exceptionally tatty coffee shop loyalty card

At least rattly frog didn't make it in this time...

The Good, the Bad and the Health Visitor

First up, excellent news that in a fortnight Wriggles has gained 220g! How this has happened, I have frankly no idea as she has been bypassing all feeds like nobodies business and is only interested in sucking Quavers which are not full of calories. However, I am not questioning this gain but merely proudly putting my little spot around the 2nd centile on the dreaded chart and am prepared to tell any paediatricians to bog off if they think otherwise.

Rather irritatingly, going to baby clinic for these frequent weigh-ins (not by choice but on orders of the hospital) means that I have to see the Health Visitors more often than I would otherwise. I am sure that out there, there are some marvellous health visitors, and although mine is not terrible, she is very good at winding me up. I know she is not trying to, and she has admitted she has little to no knowledge of prematurity or feeding disorders and doesn't really know how to help mothers who struggle with mental health, like PND or anxiety. But each time, her well-meaning but ignorant comments sting and I go home beginning to question again if I am good enough or if making it up as I go along just doesn't cut the mustard.

Help

Suspiciously similar to above

MISSING: One sweet natured placid curly topped giggler. Aged eighteen months but pocket sized. Four and three quarters teeth and a very cheeky face. Likes pulling books apart, cuddles and Christmas Hedgehog's nose. Dislikes food, getting out the bath and sand. Often found with only one sock on.

FOUND: One pint-sized monster causing havoc among anyone with a handbag, wearing shoes and/or socks and a Houdini like ability to vanish in a puff of smoke. Threatens to bite anything near it's face and eat bubblewrap and cardboard boxes by the shedload.



I don't know when it happened. Somewhere in the last few weeks since the crawling began and independence loomed onto the horizon, Wriggles, at least I assume it is still Wriggles, has left behind the calm and laid back loony baby stage behind, and with no warning whatsoever has become a vandal. Not just a vandal but a thieving vandal with the attention span of an attention deficient hyperactive gnat on drugs.

De-Cluttering

I am having a clear-out or clear-up.
I have always been a perpetually messy sort and I am slightly ashamed to let people into my house.


I find sort-outs quite therapeutic too and a little trip down memory lane, finding parts of you that you might have forgotten about. I have a (very large) memory box where treasured birthday cards, postcards, rambling letters and funny post-it notes from friends go. I also have the only physical token of my albeit brief courtship with Wriggles' father, when on our first date after a few glasses of wine we decided to compare handwriting on a scrap of paper. Funny the things you keep. When after a while he disappeared into the ether, or at least, stopping calling me, I meant to throw it out. Now I'm quite glad, not because I have particularly sentimental feelings about or for him, but that there is some evidence that we at least met in a not-just-procreating sense.


Amongst my mountains of things, I also have like every parent, A LOT of baby items. It always amazes me how one small person can take up so much room and acquire so many things in such a short space of time. But acquire they do! And grow, relatively quickly. I now have amongst other things a baby-seat, a moses basket and rocker, a large pram, a sling, a slightly faulty pushchair and a baby bath as well as probably hundreds of clothes, ranging from premature sizes up until 6-12 months. Some is millionth hand already, but most of it is in pretty good condition. And it is taking up room. I have already sorted out some things which have gone into a memory box for Wriggles, and kept first tiny gloves and favourite jumpers, but I am still left with a multitude of things and no one small enough to use them. Recently I began working with Tiny Lives and their Nearly New sales that raise money to support the neonatal unit where Wriggles spent the first two months of her life. In the past I have donated and sold items that I had no use for, and now I am wondering whether it is time to clear out other bits and bobs that I simply have no use for anymore. Many things have had a lot of wear as Wriggles was and is, still a titch, so over the 17 months or 15 that she has been at home with me, she still uses many things more suitable for a 9 month old. 

Big feet little feet

I've never been one of those stereotypical girls obsessed with shoes who squeals with glee everytime sparkly footwear comes into vision. I do have favourite shoes though which I were until they literally fall to pieces or I concede defeat. As a student, my mum would physically bin shoes of mine that she deemed "dead" when I went home. One time I had to travel back wearing some very old school shoes as my Converse had mysteriously "disappeared" during the course of the visit.

Love

Put quite simply, nothing makes me happier than looking into this face day in and

day out.

There were lots of things I thought I loved, Wriggles, until I met you.

Chocolate biscuits for one thing.

But then I learnt what true loves means, and to use a cliche, I am nothing with you 

now.

 I am sharing an image of something I love with Love All Blogs and Albelli. I was going

 to try and be slightly less obvious, but when I looked through all the pictures I have 

 ever taken, there is nothing better than my small Wriggly person, so here she is.

 Superior to a KitKat and better than hobnobs.

Smile

Augustus and His Smile by Catherine Rayner is one of my favourite books. I adore Catherine's illustrations which are classic, whimsical and full of character. This is one I will happily read again and again to Wriggles; if she will let me! It is one of the very first books I bought 'for her' when she was a few weeks old and still months away from being classed as 'term'. Once she came home I would show her pictures and read the story to her when I became stuck on what else to say to a newborn. (The books say talking to them is vital, but they are not very conversational!)

Augustus is a happy tiger until one day his smile goes missing. He sets out on an intrepid adventure to find his pesky runaway grin, taking in the treetops, the desert, the sea and the mountains. Rayner's pictures transport me instantly and her colour palette (it's the former art student in me!) is gorgeous. I love then enormous pictures that you feel like you could step into.

Luckily for Augustus, his smile is not far away. As he skips through the rain, he catches a familiar sight in a puddle....you'll never guess..his smile! Have a point and a chocolate biscuit all round if you got that one. 

It is a sweet tale without being nauseatingly twee, and I think the tiger and jungle setting makes it loveable for both boys and girls alike. I like the simplicity of it and the purity. toGranted, I have never met a materialistic tiger hellbent on this season's antelope handbag, but I think it has a really strong message that all you need to be happy is to be yourself and to enjoy life and all the experiences that it throws at you. My baby daughter already seems quite keen on throwing herself into life, and she has the most blissfully gorgeous cheeky smile that I hope will be plastered on her face for eternity. 

This story reminds me of all that I want for her-happiness. I can try to provide as best as I can and doubtless will sometimes fall short. I may not be able to literally bring her the mountains, the desert and the sea (THINK of the carbon footprint, not to mention airport tax... ) but I hope I can show her, or guide her through the richness of life enabling her to sample everything.
I think children become your "puddle" so to speak. We all have moments when we wobble and fall down and feel really, really rubbish or lost. But the magical thing about being being a mummy, is that you have this little mirror trailing around your legs; an infinite reminder about what life and living is all about. When I came home from work today, my daughter didn't want to play with her toys, she wanted me. It was either one of the more explicit times that she demanded unadulterated affection, or one of the first times I've really noticed since starting to shake off the fog of depression. We played on the living room floor, she sat on me as if I was a seaside donkey and we sang, tickled and laughed. As I plonked her into the bath, she would turn to me every few seconds inbetween gleefully splashing (her new trick), offering up a huge toothy grin. It made me feel all wibbley inside. It's such a soppy cliche, but her smile is my smile. 

When she looks at me, nothing else matters. 

When I was really struggling in the past, in the thick of hospital admissions and uncertainity and horrible doubts, I never thought I would be able to think as simply as that. I have always known that was the 'right answer' so to speak, but there always seemed to be a "but". I'm not naive enough to say that's it, the bad is all gone away and shall never return, life is so more complex than that and the human mind is more complex still, but I know what is real and what really matters. 

And that is what I want Wriggles to know most of all out of life: that happiness is more important than perfection. If you can be happy and make other people happy, then you're doing pretty well. As you become an adult, then a parent, it becomes a very intricate balancing act taking all sorts of factors into play to achieve such an end. What I'm learning is that you don't have to have it nailed completely, not all the time. Life evolves, what is important one day is not the next. But that's the great thing about special people. They don't change. My baby will be my baby in 50 years time and will be as cherished then as she is now, just a lot bigger. I don't know how our lives will pan out, I'm pretty sure that there will be hardships and heartache as well as lots of fun. I know realistically I can't keep her grinning the whole way through and that by the time she is grown up, I will be one of many people who are at the core of her life but I was there at the beginning. It's quite awe-inpsiring to think I set her on this journey as she makes her world around her. To go back to the book, that is why stories are so important. They help the smaller people see and equate things in their life with names and experiences. They provide pictures and words to confusion and consolidate rules that surround them, both the spoken and unspoken. And they always have a happy ending! (Or at least the good ones anyway) I think it is equally important for adults to sometimes be reminded of that, and hark back to very clear cut facts. We all know that good isn't always good and bad isn't always bad by the time we've grown up, but sometimes you need to shake off all the heavy 'stuff' and just look back into your puddle or whatever metaphor you want for yourself, and just relish in the better times. to stop thinking and worrying for a moment and just be.

Growing Up: Wriggles in Review in SCBU

SCBU felt like a very transitory place. It certainly did not not enhance any feeling of parenthood, and in many ways was quite bleak as no one wanted to be there and being there is something of a dread for any expectant parent. When your baby is born all you want is to hold them, have them with you, go home and start life. You do not want to be stuck in a clinical environment physically separated from your child, having limitations on contact and involvement and holding your breath, waiting to see if the next day holds good or bad news. For newborns, bad news should be that they have been sick for the millionth time and you have officially run out of clean t-shirts. It should not be that they have required resuscitation, have a life-threatening infection or have had a brain bleed which may or may not affect their development and life chances.

We spent nine weeks in total on the unit; one week in NICU (Intensive care) and eight weeks 'feeding and growing'. We were one of the lucky families. Nothing majorly serious happened during our stay which was as straightforward as it can be for a premature baby. Yes, it was one step forward then about six back, yes she still had apnoea's (stopping breathing) and bradycardias (slowing heart rate) meaning she needed varying degrees of stimulation, yes she needed various medication to get her through to the next step, yes she required breathing support, but she was not affected by many of the afflictions which sadly too many premature babies and their parents have to experience. The only blip was, after being in air for a few weeks, she began to tire and had to go back on to low-flow oxygen via a nasal cannula. Unfortunately, rather than wean her back of this her requirement crept up and when she started oral feeds (34 weeks gestation) she needed more and more. After fits and starts, she began to get the hang of bottle feeding and as the magic words "home time" began to be whispered it looked like she was going home on oxygen.

 

Many parents are left reeling from SCBU months and years later. It is such an alien place that is to the be the ground for the some of the best and worst moments of your life as a family.  You have a baby; but you don't have a baby. And few people understand. They try, people really try but again, it is so alien.What do you say to someone who has a baby in a critical condition? What can you do for a friend who is experiencing grief? It is human nature to put a good spin on things, "don't worry, it'll be alright in the end", but sometimes this is not what we need. Personally, I felt desperate that people should acknowledge how hard it was. I mean, can you imagine leaving a tiny, sick baby while you go home? Can you imagine giving birth then existing separately whilst other people care for your baby? Can you imagine asking permission to just touch their hand? On one hand, you are so grateful to the medical staff for saving your baby, ensuring you do have a happy future, but on the other you are almost seething with resentment that it should be you taking care and being a parent.

Everyone deals with the experience very differently. This briefly was mine, and in hindsight my pleas I wish I had had the strength to say out loud to people at the time. They may sound selfish in places, but I cannot convey enough how distressing it can be:

• This is one of the hardest times for me. Don't try and make it better: the only way it is better is either by turning back the clock or turning it forward being at home
• Please don't crowd me. I spend all day, whilst sitting solitary by an incubator, surrounded by people who rightly know all my private business, who record things I might say and who know every movement I make.
• Please let me get to know my baby first. I know everyone is excited by a new baby and wants to take part, meet them and have fun but I am still bonding with my baby. It is hard, really hard. Let us have some space. We will be glad of the company when we are ready, but only then.
• I really don't care if your next door neighbour bar two has a cousin twice removed whom was born 16 weeks early and now is a Nobel prize winning weight lifting millionaire hunk
• Don't keep saying it will be alright in the end. That is one of the worst things about this: there is no way of knowing if it will be. 
• Once we get home, it will be like starting all over again. My baby might be well over a month old, but will likely only be reaching the stage of being effectively newborn. So it might take a lot longer than you think
• This will not go away overnight. I might really need a shoulder to cry on months down the line. Repeatedly. Please don't tell me to pull myself together and be grateful. It still hurts.

Before I even started blogging myself, here are three great posts by other bloggers about life in SCBU and how it feels, how frustrating it can be and how to help a friend or relative who might be experiencing it:

Edspire

Mummy Pink Wellies

Diary of a Premmy Mum

SCBU seems to sum up having a premature baby; it is a physical place where we can attribute blame or sorrow if we need to, rather than a more abstract concept or uncertainty that does not have a name. I treasure my keepsakes for being physical bits of history at a time where I was mentally struggling intensely and was for the best part on another planet just to get through, which means in part I feel robbed of creating special and happy memories. They and SCBU/NICU are the beginning of a journey which can define some peoples parenting experience, as it does not stop when you leave. I found we had follow up appointments, regular development checks, and when it transpired things were going more slowly, began to receive referrals to more specialist teams. These were all down to prematurity and the long-lasting affects. It never ceases to amaze me that being born weeks early can mean years of catching up. You simply don't pick up where you left off once outside the womb. Many are lucky and catch up between 2-5 years of age but equally many are left with long lasting problems, either physically, socially or cognitively. Of course, like anything these can be from mild to severe and can be managed, but it is not something any parent expects to have to contend with. It does not affect the love you have for your child, it just is something that as a parent you learn to accept and let go of some of your dreams of "My Ideal Perfect Family". It is learning that perfect has many forms.

Motherhood myths

So much for resolutions; I was fifteen minutes late for work arriving with unbrushed hair and sneaking my toothbrush in my handbag to quickly do en-route. I thought things were supposed to get easier as baby got older! My "baby brain" seems to be disintegrating at an alarming rate.

As life plods on and Wriggles grows up there appear to be a wealth of things creeping out the woodwork that you either don't get told about or get brushed under the carpet very quickly.

1. The birth of your child is the happiest day of your life

This is my personal bugbear as unfortunately Wriggles' birth was a very traumatic event for I think, both of us. It was one of the worst days of my life as I had no idea if my baby would survive let alone unscathed and according a midwife full of cheer, I was very lucky to still be there too. I gave birth alas with no medical assistance as it came very quickly and had to resuscitate my daughter prior to the arrival of the paramedics before being rushed to theatre myself. I only fleetingly saw her the day after, did not hold her for days and only got skin to skin at a month old. Some jolly day that birth was then.

2. Breast is Best

This is controversial, and I'm not actually disputing. It is best. I am convinced of that fact and stand in awe of mothers that breastfeed and express, whether for a day or a year or longer. It is a skill I never have had. What I do ever so slightly wish though is that formula was not referred to snidely by some people. As my child was premature, I don't regret (mostly) that she was fed on formula as it was a specific recipe designed to meet her needs she had missed out in utero. It also gave us the opportunity to take part in a medical trial, trialling a new formula for premature and low birth weight children which hopefully will make the road smoother for future parents. As a non-breastfeeder I can't comment on whether it was easier bottle feeding, but I suspect bar any physical pain and mastitis, feeding any very small 'want it noooooooooooow!' infant is very very very exhausting. Why do they want to feed excessively small amounts every fifteen minutes? Why 4am? Why?!

3. Mothers will instinctively know what their child wants and needs

Well, this is true I would say at about 6 months into it if you are lucky. Either that or I am incredibly unintuitive. Poor Wriggles. I found the early days like wading through a fog with a blindfold on, desperately fumbling with an unerring sense I might be doing it wrong and subjecting my poor child to misery. I doubt this was true, but it felt like everything was a stab in the dark and making a decision came down to a case of whittling things down. Every vomit seemed a damnation of my parenting ("Oh that'll be reflux!" trilled a GP only about eight long months later) and every exploding nappy up to the neck felt a punishment.

4. Cliches.

Most of the cliches are true and yet no one seems to appreciate it when you have had three minutes sleep for 4 weeks running, could pack a suitcase for a family of nineteen under your eyes and cannot remember the concept of matching socks let alone find any. Birth hurts but no one wants to hear after it happened, you love your child uncontrollably but people get bored after the ninth hour of you waxing lyrical about nappy contents and you do forget everything, not that your boss takes that as an excuse why you photocopied everything upside down... The worst one is exhaustion. Even that word does not sum up the real feeling of it when your limbs feel like a ton of bricks and if you admit it, you're likely to be met with a jolly "Oh it can't be that bad!". As you gravely grip a cup of super-strength coffee and dream of lie-ins (are they a myth?) the whole world appears to be tripping around on roses and yet you feel like death. Except you don't have time to.

5. Life is never the same

So this one isn't a myth. But you don't appreciate in until your life is upside down and doesn't appear to be re-turning anytime soon. In fact, it seems to have shifted to another orbit entirely without consulting you first. Once your newborn comes home with you, everything revolves around them, and rightly so. At 16 months, I have forgotten what life used to be like and it is only now I am beginning to think about reclaiming a tiny tiny bit of 'my' life back, far less doing anything about it yet. That might be next years new resolution. The practical details (no, I can't come to the pub at fifteen minutes short notice/take the baby to the restaurant and keep her quiet under the table/etc) and immense and overwhelming at time. Everything has to military precision otherwise it all falls apart, normally in public when favourite Mouse has got misplaced, you ran out of milk and your soup has been kindly upturned on your lap. I have a sneaking suspicion that my childless friends look on in wry humour, like I did I must admit, thinking that will never be me. I will have a perfect pink-cheeked baby who will quietly follow my instructions as we travel around going from coffee shop to quaint bistro... wake up! There are days when I really wonder what is worth what; is working work it, is trying to do a gazillion (I wish!) stimulating sessions worth it, it is really worth dredging around playgroup to playgroup to find one that doesn't make your toes crawl? (I did find two lovely groups for the record) As a singleton pre-child, you never imagine salvation to come kneeling in a draughty church community centre with hair sticking up and yesterdays food-stained cardigan still on and comparing notes on lack of sleep. But the flip side to this, is you never imagine the pure joy a gummy grin in the morning can bring, how a cuddle can pierce your heart and the privilege of watching a little person develop and become themselves in their own right. So apart from work, I haven't actually yet had a period of time apart from my daughter? Frankly I don't really mind yet. The hours I spend with her make up for it all. A little hand on my knee can miraculously melt away the frustration of the previous hour, like nothing else. Not even kitkats can do that...

 

Harrrrrumph...............I mean happy new year!

Happy new year!

I so nearly managed a "perfect" day. After a blissful Christmas with my family in Kent, we all intrepidly boarded the East Coast mainline yesterday for a New Year at my northern abode. This morning everyone arose rested and ambled around in pyjamas playing with Wriggles and drinking endless cups of tea. At lunch Wriggles finished her two-week boycott of food and demolished not one, but two (TWO ladies and gentlemen) mini fromage frais and ate the corner of a board book for dessert. Mid afternoon, I bundled her up in new woollen leggings and coat and we made forth to the city centre to see an exciting parade.

Waiting for the metro, poor Wriggles was violently sick. She still suffers from reflux and has a over-sensitive gag reflex and not particularly eloquent oral skills, meaning at 16 months she is still prone to frequent forceful projectile vomiting with feeds and sometimes can be triggered by something so much as brushing her lips. I managed to stem some of the flow with her footmuff but she still succeeded in decorating a large portion of the inside of her coat and inner ear not to mention plastering her hair. I really hate reflux. Not just because it involves dabbling around in sick and wearing that popular around strained mums, 'eau de baby's stomach contents', but mainly for Wriggles' sake. It must be so horrid for her, I just want to wave a magic wand and make her a hundred times more comfortable. It also serves as a daily reminder of prematurity and on bad days taunts me. Rational-me knows it is not my fault but a medical condition that could still be there even if she had been a term baby. Irrational-me says it is all my fault and if I was a perfect mummy like I should be, it wouldn't be here tormenting my baby. It also panics me when I run out of baby wipes on a platform in gale force winds already late to meet my family due to misplacing of the baby's mittens.

We managed to make it in without little trouble, located the family, vetoed Starbucks due to a monstrous queue and found a place to watch the parade that was causing this fuss. Now unfortunately since Wriggles' birth, I have gone from a mild dislike of crowds to having panic attacks when in crowded places and/or stressful situations, or sometimes, Just Because. Cheers mental health. However, I have not had a full-blown one since her birthday in September when we went to a singing and music day (how not to appear a normal level-headed potential mummy friend at the local play centre) and later on that day, the post office.As I took up my spot, I could feel my airways tightenings, panic rising and tears springing up. It is not easy juggling a wriggly Wriggles (my sister had commandeered the buggy to house her shopping sale purchases; this baffled me. I literally cannot remember anymore shopping being anymore than a terse trip around Sainsburys and occasionally a slightly dog-eared jumper from Oxfam which is next to Sainsburys) and practising deep breathing whilst trying to stop sobbing and not appearing a lunatic to a) my family who seemed entirely unaware as were busy bitching about the taxi parked in front of their sight line and b) the general public including a picture perfect family stood next to us. When the parade finally went through, it seemed an utter let-down, possibly as I was wishing it to go faster so I could run off, and partly as Wriggles was far more interested in trying to wave at the two-year old little girl nearby and fend off a little boy who wanted to hold her hand (she will not hold hands with strangers. This is the only hint of separation anxiety; apparently I have shouldered the rest of it). The "Norse-themed mythical spectacular" featured dragons, morris men and mermaids as well as some 'wolves' which looked more like rabid lions on a bad hair day. Apart from that, it was extremely jolly I have been told from people more with it.

The rest of the evening passed without offence. The new year came and went; we all watched Cyndi Lauper in a bin liner on Jools Holland and watched some poor fireworks out  the kitchen window. Wriggles slept unaware of the year turning. I sat her down on New Years Eve and explained about the concept of years and celebrations to be greeted with a blank look and a biffed nose. It could have been worse; she is quite partial for biting noses when teething. Mostly this can be relegated to long suffering Mouse, Christmas Hedgehog and Wheely Hedgehog but occasionally she still goes for people's snozzles or Grandma's toes. New Year always feels such a anti-climax after the bustle of Christmas. However, the next day (post-lunchtime) feels like a fresh new start. Which I fully intend it to be. It is hard to believe my little girl will be 2 this year. This last year has been undoubtedly tough with it's frequent and frightening admissions to hospital. When counting up, we spent as much time in hospital as I do work; not a healthy balance to off-set nice time at home. But now we are crossing the magical boundary of most time ever out of hospital......Long may it continue! That is my new years thanks.I have spent a lot of the time of 2011 reflecting and regretting the sad moments, so want to stuff 2012 with as many happy times as possible. Bring it on!

My New Leaf:

*throw out holey tights (they do not magically self-mend and there is only so much nail polish you can apply to "disguise" ladders) and pair up to socks to avert odd-sock crisis on work mornings

* try to be slightly more punctual. 5 minutes late is acceptable. 55 minutes late is not.

*be nicer to nice people and self-I do try my best and that is all I can do

*be less nice to dastardly all-night-raving complaining crack-of-dawn-shelf-putter-uppers (where do they fit in sleep?) rude neighbours

*keep in touch more frequently with my grandparents

*worry less (hahahahahahahha.......................)

*dwell less on the past to create more for the future

*take a picture everyday of Wriggles so I don't forget this fast-moving time where she seems to learn a new skill/cause more chaos every day. I know I will treasure these times when she is a sullen teenager borrowing my shoes

*get involved with Tiny Lives, the local charity that supported Wriggles' SCBU and is a regional unit providing much needed support and funds.