2 shoes - 1 shoe = cross mama

Oh dear.

My desperately-trying-to-be-perfect SAHM mantle is slipping. Forget slipping, it has crashed to the ground.

The day started off well. Miraculously we were both dressed, fed and watered by 9am and out the door for a playgroup session at our local Sure Start. We weren't even the last ones in. We played for an hour and a half, sung some songs and trundled off to the high street in our district to collect the new super-duper-high-calorie milk order and have some lunch. As a treat, we had lunch at a cafe and Wriggles had a good go at chewing the crusts of my sandwich as well as drinking a bottle of the new wonder milk. Although slightly over-cast, the sun warmed us and the air was clear so we walked up to the supermarket to collect some bits and pieces. The trouble started there. Not to be out-done by her toddler friends, Wriggles is far too interested in basically, anything other than napping, and is a little monkey to get down at the moment. I wouldn't mind, but without one she is a monster by 4:30pm and dinner, bathtime and bedtime goes down the drain as she is over-tired and answers only to the Bedtime Hour on Cbeebies. Her eyes were drooping as we started down the aisles and so I put up the cover of the pushchair so she could get some peace and drop off.

Wrong.

The next half hour was spent trying to persuade her that napping was infinitely preferable to trying to throw everything out the pushchair and pull things off the shelves. After a while, I gave up and sped round eager to leave. Everything done, in near record time, I suddenly noticed something wasn't right. There were two pink socks poking out the pushchair. 

We came in with two shoes.

One shoes, I removed swiftly and placed in my handbag as one leg is far more flexible and she can take this shoe off with her eyes closed. The other leg, is normally safe and my handbag was out of space. 

Well, safe no more. I will have to find a bigger handbag or some jeans with gigantic pockets. 

We traced out steps back round once, then twice, then three times. Wriggles smirked and giggled.

I could feel my annoyance rising. Not only were we now wasting time in blasted ASDA, there was a really irritating in-store radio with a infuriating simpering woman on it waxing lyrical about Smarties, there was poor air conditioning and Wriggles was now trying to escape and chuck things simultaneously. Clearly naptime was off the radar. After round 3, I gave up and stomped off to the tills then checked in with lost property and customer service. Nothing. 

Why I got so irritated I have no idea. The little shoes weren't very expensive, but they are the only pair we have with semi-decent soles and we are supposed to now be defying all traditional baby-feet advice and wearing something with some support and a grippy bottom to help her muddled-up legs. As I got worked off, I got yet more worked up at myself. Why did I care so much? Big deal, toddlers are contrary and throw things. We loose socks all the time, to the hoover or lord knows where. I am continually puzzling over my diminishing pile of pants and that doesn't try my patience. Still clinging on to hope of a nap, I bundled Wriggles into the parent room to change her and give her a drink before leaving. Again, common sense seemingly flew off in the air and whilst my back was turned for half a second reaching for something, she kicked over the open bottle of milk which went everywhere. And then I ashamed to say, I saw red. I don't know what came over me, but for a few seconds I was furious. I was tired, hot and stupidly the puddle of milk mattered more than my little girl. I snapped crossly at her and tapped her on the leg. Not a proper smack by any means, but my goodness regret coursed through my veins. Hot shame flew over me, berating me. You're one of THOSE mums, you can't keep your temper, you can't look after your own child, you should be ashamed of yourself. You're no better than the young single-mum stereotype. Why don't you pick up a smartprice bottle of vodka and stamp back to your council flat and sit there are swear and ignore your child! Better still, why not put her in nursery where proper adults can look after her. It's not like you're doing a good job. Trying to find some calm, I mopped it up and held her close and looked into her beautiful face as finally she stopped fighting and her eyes fluttered shut in my arms. Gently, I placed her back in the pushchair after a few moments of just being still and walked out, home.

I rarely loose my temper. In general circumstances, it takes a bit to get anything stronger than an "oh, SOD" out of me, far less a raised voice or anything physical. I know I'm quite critical of myself, but on the whole, I am a pretty laid-back flexible person verging on the indecisive and vaguely hippy. I like having a sense of routine but am far from lost without one, and 'make it up as you go along' could be my catchphrase. I don't loose it with Wriggles especially that often, and spent large chunks at present trying to remove her from the bin, stop her tearing pages from books or from stealing biros (honestly, I had hidden every last one high up and somehow she finds ones I never remember owning) and trying to scribble on the carpet. It doesn't rile me. It might make me do some deep breathing but not shout. I am used to recurrent refusal of food, things thrown on the floor and wasted. I walk away. So what the dickens am I playing at today?  I am putting it down to ill-child-syndrome. After a hospital admission, I am often out of sorts. Exhausted mentally and physically and stirred out from having to recount every aspect of the whole sorry story of the last 22 months and pouring over bad memories so that the on-call consultant can get the picture. We leave elated at being let out again, but on a state of high alert trying to remember that things are not going to go downhill. Not this time, not now. My emotions are magnified and my responses less measured and lacking in reason. I feel such a magnitude of responsibility and sometimes with no-one daily to turn to for reassurance, the desire to get it right gets to me and rips out my instincts, temporarily replacing them with someone I don't recognise. Of course, in time everything is back to normal and I am left wondering what I was making a fuss about.


As much as playing hospitals, the reality is that this parenting lark can be hard graft. Just when you think you have sussed out your baby and are proudly imparting advice to those slightly further behind, things change and you have a new personality, new sets of whims, new routine and new parenting attitude to learn and quickly. Mostly, Wriggles is a delight but some recent toddler-ish habits and less attractive traits are creeping in (sleep regression, pouting, the emergence of some tantrums, shaking her head to everything, wilful vandalism of toys, thievery of possessions and lack of concentration on erm, anything). Suddenly I need to clarify my position on discipline, work a new routine which suits us both as a family unit and find tactics to avoid these toddler-isms wherever possible. I have no problem her being herself, but I do not want to stand back in la-la-land watching while testing boundaries becomes deliberate bad behaviour. Granted, we'd have a fair way to go, not least because she is lacking in some understanding still, but I do not want to be in a helpless position because I could have done better at the time. I want to continue being proud of my daughter-and that we did it by ourselves, together.


My mum is an early years worker and I have grown up hearing complaints of parents just not doing enough and I so want to be one of the good ones. Not just for anyone else, but for Wriggles to give her the best start I can. I want her to know she is loved and safe (but not immune to discipline when needed!) and to continue being a pleasure in mixed company and a delightful figure who commands attention for all the right reasons. Of course she is going to test my patience and press my buttons: we are both only human. I think I just need more practise! As much as I am looking forward to a period of time spent the two of us at home, I am also nervous. What if today is a sign of things to come? What if I have got used to bundling her off somewhere else a few days a week and just can't do everything alone? In my heart of hearts, I know that is just parent-guilt speaking. That horrible worm that burrows it's way into your psyche, making you doubt every move you make and pointing out that so-and-so down the road does it better.


It is a little like having a newborn, or equivalent. Everyone says airily "oh it's so TIRING" and you nod politely whilst thinking "how can such a small and sleepy baby be so disruptive?". Then weeks later, you are shrieking "why didn't you tell me what hard work it was! I'd have stocked up on restful cucumber slices, Mozart and gin if I'd known!". Likewise, everyone alludes to the Terrible Twos whilst your cherubs sucks on their toy's ears. Surely they would never...? Oh yes they will. Even the nicest baby has his or her wilful moments. Even Mrs So-and-So down the road. Just because she says it's all fine and they never have a speck of trouble, that is no reason to fall for it. We are all eager enough to trade stories with a comic edge, but more reluctant to share anything that shows us off at our worse. I can't remember meeting up with mum friends or going to a toddler group where everyone trades in expletives and the worst time they lost their rag. Because we all do it. Or will do it. And short of reading your children wrong and being genuinely out of control, they are not the worse for it. After five minutes anyway. 


I left the smartprice vodka on the shelf. For this time anyway.

Dear NICU

Dear NICU,

I am angry. So angry. I know I shouldn't be but there are so many things I want to say to you. Maybe it's not healthy nearly 2 years on but I need to get this off my chest.

You denied me my role of motherhood. You took away my basic rights as a parent. You can SAY I'm still the mum, but how was I really being a mum just sitting? Sitting and staring. Watching and waiting. That's not parenting.

Do you know how demeaning it is to ask for permission to touch my baby? Not even hold, but touch? And when told, albeit gently, no not now, no not today, how you snapped my fragile heart and stamped over it before brushing it aside for dead.

How patronising and sad it is to have cuddles put on a rota, as if it was another chore to tick off. 15 minutes a day; 3pm after cares.

How I felt as small as a gnat, no smaller, as worthless as a flea because I wasn't breastfeeding. I couldn't even do that and you didn't care. You didn't even say, don't worry because it wasn't important as long as my child grew.

You smashed every one of my dreams and preconceptions of my first child, my baby I will never ever recover or now live. My innocence was lost within hours. It doesn't matter if I go on to have another baby; I will never get those hours back with her.

You were rubbish at sharing. All those weeks and I could only visit. Every night I had to leave. Every night I had to leave my baby with someone else. Someone very kind and very skilled but a stranger. Every night I had to accept that someone else would comfort my baby because I couldn't be there to do it, and might get to hold her precious hands while I wasn't allowed.

You had the most important job in the world looking after tiny vulnerable beings that were each the centre of someone's universe and yet you had no compassion. Day in day out some babies would get sick. Worse, some might leave this earth. Why didn't you do something? Something more?

You weren't me. You might have cared for my baby but you will never love her and you took her from me when she needed love the most.

Kind regards,

but maybe not that kind,

Mouse

ps. By the way, thanks for y'know, saving my baby's life and looking after her. Thanks for giving her the chance to live so we could both be happy today. More than happy. Um. Maybe you could just ignore all of the above?

*screws letter up and throws it in the bin*

Sigh.

The Best Worst Place

Recently, I met a fellow neonatal mum face to face. We were introduced by a good mutual friend of ours and had both had daughters on the Tiny Lives unit at the RVI. Our daughters had missed each other by a couple of weeks. Her gorgeous 30-weeker, now 16 months old, was born due to placental abruption. Immediately, it was like we were part of a secret club with a code language. In minutes we swapped procedures, compared stories, established mutual acquaintances on the ward and compared favourite doctors and nurses. 

"It was such a wonderful place."

"So lovely; just incredible."

Our friend, with her term baby, looked at us as if we were mad.

We paused and looked at each other as if we were mad. And quickly looked away, a slight welling of the eye and a lump in the throat.

"A horrible place."

"The worst place to be."

The thing is, both things are true. A good NICU is the best worst place to be. If you're going to be separated from your newborn, you damn well want them to be in the best equipped place with the most high-tech machines and knowledgeable staff yet also with compassion. But of course, even the best NICU, the one with the friendliest nurses and the most intelligent doctors and the newest and sparkliest and beepiest machine is never going to be enough. 

Because it's not with you. 

You can visit, yes. But that is the hitch: you have to leave. Night after night, you have to walk away. Bye bye, baby. Does your child, wired up, know you are leaving? Know the difference between night or day? Know inherently that you should be there, forever and always? That is all debatable. But to you it goes against the very grain of parenthood. It is the strangest thing: you know it is the best place for them. But you also know, that it will always fall short and cheat you both of the most loving and most caring place: being there with you.

"Reassurance"

I am always surprised by a common reaction to prematurity and low birth weights. I'm not speaking for all or other premmy parents as they may not hold my views; everyone has their own opinions and anything surrounding personal experiences or children is so intensely intimate that we will all deal with situations and people very differently.

My daughter was born just under 28 weeks weighing 1090g (2lbs 5oz) which roughly is on the fiftieth centile.

"That's a really good weight."

"It's a really good gestation."

"It's really all plain sailing now isn't it?"

"Ah well, these things happen. It's fine now."

Now. Just because Wriggles was born at a good weight for her gestation, I do not count 1090g as a good weight.

Kangaroo Care

One of my biggest regrets about Wriggles' stay in NICU/SCBU was the Kangaroo Care, or rather lack ok it.

Kangaroo Care is essentially skin-to-skin, and consists of popping a baby down your jumper or similar. If you want to fast-track your relationship with a nurse, this is a great way to get them fumbling around your bra as they rescue little limbs and caught up wires. You won't feel shy asking for help after that with them! Depending on the gestation and size of your baby, they may still be very small and likely to potentially get lost inside your clothes. The first time I did it, I lost count of the amount of times that poor Lisa, the nurse, had to rescue Wriggles from inside my dress. She would have been about 30-31 weeks and was still a titch. It very much improved my relationship with Lisa though!

Kangaroo Care has many great benefits for premature babies; the heat from the parent's body means that they do not have to struggle maintaining their temperatures thus saving precious calories, deeper and longer sleep can be established, it is comfort and security for both parties,

Smile

Augustus and His Smile by Catherine Rayner is one of my favourite books. I adore Catherine's illustrations which are classic, whimsical and full of character. This is one I will happily read again and again to Wriggles; if she will let me! It is one of the very first books I bought 'for her' when she was a few weeks old and still months away from being classed as 'term'. Once she came home I would show her pictures and read the story to her when I became stuck on what else to say to a newborn. (The books say talking to them is vital, but they are not very conversational!)

Augustus is a happy tiger until one day his smile goes missing. He sets out on an intrepid adventure to find his pesky runaway grin, taking in the treetops, the desert, the sea and the mountains. Rayner's pictures transport me instantly and her colour palette (it's the former art student in me!) is gorgeous. I love then enormous pictures that you feel like you could step into.

Luckily for Augustus, his smile is not far away. As he skips through the rain, he catches a familiar sight in a puddle....you'll never guess..his smile! Have a point and a chocolate biscuit all round if you got that one. 

It is a sweet tale without being nauseatingly twee, and I think the tiger and jungle setting makes it loveable for both boys and girls alike. I like the simplicity of it and the purity. toGranted, I have never met a materialistic tiger hellbent on this season's antelope handbag, but I think it has a really strong message that all you need to be happy is to be yourself and to enjoy life and all the experiences that it throws at you. My baby daughter already seems quite keen on throwing herself into life, and she has the most blissfully gorgeous cheeky smile that I hope will be plastered on her face for eternity. 

This story reminds me of all that I want for her-happiness. I can try to provide as best as I can and doubtless will sometimes fall short. I may not be able to literally bring her the mountains, the desert and the sea (THINK of the carbon footprint, not to mention airport tax... ) but I hope I can show her, or guide her through the richness of life enabling her to sample everything.
I think children become your "puddle" so to speak. We all have moments when we wobble and fall down and feel really, really rubbish or lost. But the magical thing about being being a mummy, is that you have this little mirror trailing around your legs; an infinite reminder about what life and living is all about. When I came home from work today, my daughter didn't want to play with her toys, she wanted me. It was either one of the more explicit times that she demanded unadulterated affection, or one of the first times I've really noticed since starting to shake off the fog of depression. We played on the living room floor, she sat on me as if I was a seaside donkey and we sang, tickled and laughed. As I plonked her into the bath, she would turn to me every few seconds inbetween gleefully splashing (her new trick), offering up a huge toothy grin. It made me feel all wibbley inside. It's such a soppy cliche, but her smile is my smile. 

When she looks at me, nothing else matters. 

When I was really struggling in the past, in the thick of hospital admissions and uncertainity and horrible doubts, I never thought I would be able to think as simply as that. I have always known that was the 'right answer' so to speak, but there always seemed to be a "but". I'm not naive enough to say that's it, the bad is all gone away and shall never return, life is so more complex than that and the human mind is more complex still, but I know what is real and what really matters. 

And that is what I want Wriggles to know most of all out of life: that happiness is more important than perfection. If you can be happy and make other people happy, then you're doing pretty well. As you become an adult, then a parent, it becomes a very intricate balancing act taking all sorts of factors into play to achieve such an end. What I'm learning is that you don't have to have it nailed completely, not all the time. Life evolves, what is important one day is not the next. But that's the great thing about special people. They don't change. My baby will be my baby in 50 years time and will be as cherished then as she is now, just a lot bigger. I don't know how our lives will pan out, I'm pretty sure that there will be hardships and heartache as well as lots of fun. I know realistically I can't keep her grinning the whole way through and that by the time she is grown up, I will be one of many people who are at the core of her life but I was there at the beginning. It's quite awe-inpsiring to think I set her on this journey as she makes her world around her. To go back to the book, that is why stories are so important. They help the smaller people see and equate things in their life with names and experiences. They provide pictures and words to confusion and consolidate rules that surround them, both the spoken and unspoken. And they always have a happy ending! (Or at least the good ones anyway) I think it is equally important for adults to sometimes be reminded of that, and hark back to very clear cut facts. We all know that good isn't always good and bad isn't always bad by the time we've grown up, but sometimes you need to shake off all the heavy 'stuff' and just look back into your puddle or whatever metaphor you want for yourself, and just relish in the better times. to stop thinking and worrying for a moment and just be.

Growing Up: Wriggles in Review in SCBU

SCBU felt like a very transitory place. It certainly did not not enhance any feeling of parenthood, and in many ways was quite bleak as no one wanted to be there and being there is something of a dread for any expectant parent. When your baby is born all you want is to hold them, have them with you, go home and start life. You do not want to be stuck in a clinical environment physically separated from your child, having limitations on contact and involvement and holding your breath, waiting to see if the next day holds good or bad news. For newborns, bad news should be that they have been sick for the millionth time and you have officially run out of clean t-shirts. It should not be that they have required resuscitation, have a life-threatening infection or have had a brain bleed which may or may not affect their development and life chances.

We spent nine weeks in total on the unit; one week in NICU (Intensive care) and eight weeks 'feeding and growing'. We were one of the lucky families. Nothing majorly serious happened during our stay which was as straightforward as it can be for a premature baby. Yes, it was one step forward then about six back, yes she still had apnoea's (stopping breathing) and bradycardias (slowing heart rate) meaning she needed varying degrees of stimulation, yes she needed various medication to get her through to the next step, yes she required breathing support, but she was not affected by many of the afflictions which sadly too many premature babies and their parents have to experience. The only blip was, after being in air for a few weeks, she began to tire and had to go back on to low-flow oxygen via a nasal cannula. Unfortunately, rather than wean her back of this her requirement crept up and when she started oral feeds (34 weeks gestation) she needed more and more. After fits and starts, she began to get the hang of bottle feeding and as the magic words "home time" began to be whispered it looked like she was going home on oxygen.

 

Many parents are left reeling from SCBU months and years later. It is such an alien place that is to the be the ground for the some of the best and worst moments of your life as a family.  You have a baby; but you don't have a baby. And few people understand. They try, people really try but again, it is so alien.What do you say to someone who has a baby in a critical condition? What can you do for a friend who is experiencing grief? It is human nature to put a good spin on things, "don't worry, it'll be alright in the end", but sometimes this is not what we need. Personally, I felt desperate that people should acknowledge how hard it was. I mean, can you imagine leaving a tiny, sick baby while you go home? Can you imagine giving birth then existing separately whilst other people care for your baby? Can you imagine asking permission to just touch their hand? On one hand, you are so grateful to the medical staff for saving your baby, ensuring you do have a happy future, but on the other you are almost seething with resentment that it should be you taking care and being a parent.

Everyone deals with the experience very differently. This briefly was mine, and in hindsight my pleas I wish I had had the strength to say out loud to people at the time. They may sound selfish in places, but I cannot convey enough how distressing it can be:

• This is one of the hardest times for me. Don't try and make it better: the only way it is better is either by turning back the clock or turning it forward being at home
• Please don't crowd me. I spend all day, whilst sitting solitary by an incubator, surrounded by people who rightly know all my private business, who record things I might say and who know every movement I make.
• Please let me get to know my baby first. I know everyone is excited by a new baby and wants to take part, meet them and have fun but I am still bonding with my baby. It is hard, really hard. Let us have some space. We will be glad of the company when we are ready, but only then.
• I really don't care if your next door neighbour bar two has a cousin twice removed whom was born 16 weeks early and now is a Nobel prize winning weight lifting millionaire hunk
• Don't keep saying it will be alright in the end. That is one of the worst things about this: there is no way of knowing if it will be. 
• Once we get home, it will be like starting all over again. My baby might be well over a month old, but will likely only be reaching the stage of being effectively newborn. So it might take a lot longer than you think
• This will not go away overnight. I might really need a shoulder to cry on months down the line. Repeatedly. Please don't tell me to pull myself together and be grateful. It still hurts.

Before I even started blogging myself, here are three great posts by other bloggers about life in SCBU and how it feels, how frustrating it can be and how to help a friend or relative who might be experiencing it:

Edspire

Mummy Pink Wellies

Diary of a Premmy Mum

SCBU seems to sum up having a premature baby; it is a physical place where we can attribute blame or sorrow if we need to, rather than a more abstract concept or uncertainty that does not have a name. I treasure my keepsakes for being physical bits of history at a time where I was mentally struggling intensely and was for the best part on another planet just to get through, which means in part I feel robbed of creating special and happy memories. They and SCBU/NICU are the beginning of a journey which can define some peoples parenting experience, as it does not stop when you leave. I found we had follow up appointments, regular development checks, and when it transpired things were going more slowly, began to receive referrals to more specialist teams. These were all down to prematurity and the long-lasting affects. It never ceases to amaze me that being born weeks early can mean years of catching up. You simply don't pick up where you left off once outside the womb. Many are lucky and catch up between 2-5 years of age but equally many are left with long lasting problems, either physically, socially or cognitively. Of course, like anything these can be from mild to severe and can be managed, but it is not something any parent expects to have to contend with. It does not affect the love you have for your child, it just is something that as a parent you learn to accept and let go of some of your dreams of "My Ideal Perfect Family". It is learning that perfect has many forms.