One Week On

So, we are one week on from being home alone with our new PEG tube and I am pleased to say that actually, it is a lot easier than I feared! Last Friday, after getting home exhausted from a sleep deprived few days and understandably cranky baby, I was so worried that this was the icing on the cake and I just couldn't cope. The phone was on standby, ready for me to ring the hospital and plead that I would have to move there and become a permanent in-patient as we just couldn't do things at home.

How wonderful a new day is though-this week we have gained in confidence, Wriggles has regained her mobility and I have set up and disconnected the tube and feeds in shopping centres, museums, cafes, the bus stop and in the playground, surrounded by people. Whether a good or bad thing, I couldn't care less and actually once I am used to it, it is more discreet than I originally thought and people are just as likely to stare because my beautiful nutcase is cackling away in the buggy pointing at things and throwing Noodle the hedgehog over the side as opposed to wonder why an earth I am bobbing around with a syringe and a beeping buggy.

Climbing skills? Check! Wriggles regains her confidence and ability to move about

The most difficult thing is keeping Wriggles entertained for the duration of a feed. Luckily, the large chunk of her feeds is contained in a 10 hour night feed so we only have three daytime boluses, one of which can often been coincided with nap time. At the start of the week, I simply could not get any of the boluses, even the smallest amount, under an hour and they would often stretch on for longer to keep Wriggles from bringing them straight back up. I have slowly managed to tweak the rates up, and whilst they are not quite up to the half hourly rate we had before, they are more manageable now and things do not seem half as depressing now there are longer stretches and it no longer seems Wriggles is attached at all times to a feeding pump! The best thing, without a doubt, is not having to re-pass a tube regularly. The nasogasteric tube was re-passed so frequently and was horrible to see. But no more!  

The New Teatimes: running after toddler wielding feeding pump

Bedtime has slowly become easier. I have managed to bring bedtime forwards a little to something resembling our pre-hospital routine and am hopeful I will be able to soon do the same for the nap and to start having a mildly more structured morning. Living in pyjamas is beginning to take it's toll, especially when realising the rest of the world does not regard 9am as particularly early. Wriggles will now fall asleep by herself again, rather than the beginning of the week when she needed rocking to sleep and a great deal of comfort throughout the night. Her stoma infection is clearing up nicely and she is far less confused or distressed. I am still feeling exhausted after the stints in hospital. It is hard to switch off, and if I go to bed at a sensible time, I often lie awake for hours. Like everything else, it is getting easier just not at the fast pace I would prefer. But like everything else, I am getting used to it. Slowly. The tiring part is that whilst my toddler might need some extra care and things doing compared to another toddler, she is still that: a toddler. A full-of-beans, opinionated, lunatic, mountaineer-to-be, cheeky, frustrating, wonderful toddler. Does she care she does some things differently to her friends? Does she heck. Today we met up with some baby friends in the park, and it was so lovely to see them all excitedly pointing at each other and one of them exclaim "Lis! Lis!" at her (toddler language for her name it would seem. Other toddler-speak highlights from her friend included "Can you say please?" "Mice"). I went home feeling refreshed and like a bit of the worry had ebbed away.

So...here is to another week. Cheers!

My Happy Girl

Today, I had some friends over. This isn't exactly unusual as we often meet friends either out or in, singularly and in groups. Today's friends are those I don't see every week, and the four of us adults lazily amused my adorably smiley little girl who was clearly in her element basking in the attention of quadruple what she is used to. For a bit it made me a bit sad that my family is not the "traditional" idyll it could have been if things had been different. My friends visiting have been on our journey since the beginning, and the two of them that I have known for longest were rocks in the long PICU days, often giving up time to come and sit in the claustrophobic room with my comatose baby on the brink. None of them have children yet, and as much as I love my mum-friends who save my sanity and make days of the week go quicker and more enjoyably, it is also refreshing to be with caring childless friends who don't have the worries, competitiveness or strains of child development, or the lingo that goes with it. Questions or comments were made innocently, curiously and sympathetically.

"Why isn't she walking yet?"

This is a question which normally riles me, brings my defences up and prickles at my soul. Yes, I know she is nearly 2, I know all her peers are walking, I know maybe she "should" be. But actually, today it didn't make me cross or upset. I explained about the prematurity thing and corrected age and that the repetitive illnesses have delayed development on top of any genuine delays. I explained about the muscle tone and that that was why we had multiple input (which I think baffles many people, because Wriggles looks so perfect they can't imagine why she would need it) and that we were still sort of in limbo to see if it was worthy of a diagnosis that may have more long term implications or whether it would sort itself out. That it may prove to be more positional, more muscular, more structural or more neurological or a combination of some or all of the above.


We all looked at the happy squwarker, who was troubling the book box.


It wasn't bothering her.

She didn't care.


Everywhere we go we receive compliments as melts everyones hearts and charms the socks off people. She really is the most lovely little person I could ask for, and I know our family and "urban family" of extended friends all cherish having her, us, in their lives. When you think of a medical problem, or situation, or label, a certain stereotype can spring to mind. Before this whole journey, I'll admit maybe I was biased to. But over the last 22 months, everything I ever thought has been challenged and I've drawn up a whole new set of preconceptions, of expectations and pleasures. Seeing beauty in things and people and celebrating wonderful children who might otherwise have lead very different parts. We've met those with far more severe limitations and those like ourselves who straddle the border between one camp and another. Those who may well have been in for a much-rougher journey but by miracles of fate and luck, have actually bypassed any hardship and unexpectedly followed a very expected pathway. And all of their parents feel the same way about their children as I do about Wriggles. 


It's so easy to become pre-occupied with labels and names, and sometimes they are necessary and very positive. They open doors to help, provide support for everyone and give answers. Sometimes though they can overshadow the person that has been labelled though. The smiling child.


As I explained today, I can't predict where our future will take us. Sometimes I suspect it is one thing, and sometimes I think another. I'm not sure I would be overly surprised either way as to getting answers or not getting answers, especially as our wonderful physiotherapy team have always been very gentle and honest with us. I have to put my faith into a professional which although I can grasp the basics of, have no idea of the more technical or complex aspects. I can put my faith in my little girl: that bit is easy. But strangers? Will they know how special she is, how much she deserves? That is the hard bit. I can take not knowing when things will happen because I trust they will. I just want everyone to see the best in my happy wrigglebottom whether she gets a new "name" or not.

What would you call me?

Sometimes

Always, always, always I am proud of Wriggles.

Proud of what she has achieved.

Proud of what she will achieve.

Proud of how far she has come.

Proud of what a delight she is (tantrums excluded) and how she charms the pants off anyone and puts a smile on the face of strangers.

But sometimes, although I am proud I am also sad.

Not disappointed, but sad. There is a huge difference between the two.

Sometimes I look at other children, and whilst I do not compare, I do notice. Notice that those younger are taking steps, forming forms, wobbling around whilst my older girl crawls around blissfully. And sometimes I feel angry or upset or frustrated that anyone should have a complicated journey, that any innocent child should have to be on a different path, that any family should have a challenging journey.

It's character building, they said. Challenges make us stronger and us who we are. 

Sometimes I believe it and sometimes I think it is bollocks.

Sometimes I want to know what the future holds and sometimes I am scared. Sometimes I am furious at the universe for giving my beautiful girl such a mixed bag when other (less nice, obviously) children get such an easy ride. To them, the terms I know and hear and think about every day are either those of ignorance or simply intellectual. To me, they are part of my child.

Sometimes I wonder if I had done anything any differently if we would have had the complications we did and still live with.

Sometimes I wish I could just take Wriggles had and run off into the sunset, away from doctors, from clinic, from observations, from reports, and just be the two of us alone.

Without Faith

I am not a religious person.I never have been, apart from a brief zealous period in the Brownies when I wanted to carry the flag in the Sunday School parade. I completed my A Levels at an Irish Catholic school which strongly resembled a spin off of Father Ted crossed with St Trinians; lessons were cancelled if a crucifix fell off the wall ("a sign"), classes were taught via the medium of various versions of Jesus Christ Superstar (I wish I was joking) and everyone generally ran riot. I was indifferent to the religious attitudes surrounding me day in day out, but really very fond of the community I was in. I became decidedly more atheist after going to university and encountering some for more militant religious types who thought that bullying others because they disagreed was acceptable. I know these were mainly in the minority compared to hundreds of gentle, caring soul but it was an unpleasant eye-opener. My family are not religious but my parents and sister quietly have their own beliefs which they follow in ways they feel comfortable with. My father had a slightly more traditionally Christian upbringing from what he says, but his own way of doing things is more insular and private. Many of my friends have faith, from the agnostic maybes to the very committed. I like the idea, but I just cannot believe. This is not just about religion though.

I often wondered that if faced with a dreadful situation, would I instinctively call on God, a God, any God, multiple Gods, to give me strength? Did I feel atheist because I had never been challenged enough in my comfortable life?

Sadly in January 2009 this was put to the test, when my father having contracted an aggressive infected that was shutting down his body and ulcerating his heart was rushed for emergency and life-saving surgery at a major London hospital. We were were a 33% chance of survival. As we sat in the waiting room all night for 6 hours waiting, watching as dawn broke and the smoke from the incinerator several floors belows curled up into the crisp new sky, I thought many things. I wished many things and hoped many more and worried about stupid stupid things. I wanted to find an inner strength, a inner connection, an inner belief. An all-knowing kind benevolence that could be a guarantee on saving the life of this intelligent and kind man who's life hung in the balance on an operating table, at mercy of the experience and capabilities of a team of surgeons we never met before, and at the mercy of even worse: chance. Chance has no compassion. Chance doesn't care about statistics or history. Chance strikes opportunistically.

But I found nothing. Nothing but blindless hope that I hadn't hours earlier spoke my last words to the man who gave me life and brought me up. I wished and I wished; to no one but the silence that cloaked us. When finally, we were told the operation had ceased and we must now watch and wait to monitor the success of that and the antibiotics, the wishing carried on. Wishing is probably the wrong word; it was to no one but for everything. It was a mundane disbelief that this could not be happening to the strong man I knew. Almost a deliberate lack of acceptance and a need to keep going, for if we did as a family, then he would too. And in April that year, he came home.

Many times afterwards, the odd religious friend who knew about the experience would say, "so surely now you believe, now you have been spared."

I'll admit, that made me angry. Being without the foundations and faith of religion, I did not see how I 'should' be a convert. Yes, my father had been saved. By the quickness of the NHS, by renowned doctors and clever nurses. By luck, maybe, but my precision and skill also. By the brilliance of modern care and the civilised world. If I was to believe, even if I wanted to, and goodness did I some bleak days, where was this omnipotent God when my father got that ill? Who, who saves, would let someone get in that situation in the first place? My atheism was more concrete than ever, although with a much softer edge and more understanding of those who did believe. The attitudes mentioned above did make me cross, but I understood how some people needed and felt healed by religion and their faith. Me, I found the things that got me through was not belief but monotony and memories. Memories of happier times and monotony must pay bills, must eat, must update relatives, must wash, must dress.

And then Wriggles came into the world, 12 weeks early on my bathroom floor.

And again, no God even so much as poked His nose around the door of NICU. If I had had a glimmer of believing, I might have done the religious equivalent of leaving him a sherry and mince pie to entice him into my life to give me some cheer and the best present ever, that was currently fighting in an incubator. But I didn't. I couldn't. Where I imagine some keep faith, was an empty box. A hole that was filled certainly with cautious hope as days ticked by, but not directed anywhere. Again monotony gave me strength. That and an-increasingly dog eared photograph of a little scrap that was called my daughter. In order not to be allowed thinking time, I tried to do everything under the sun. Including a spate at work in the middle of the NICU stay. Partly I was run ragged about finances and a very grey-area-ed work contract, but it also offered some salvation of not having to hope or wish or think or be guilty. Hello you're through to .... can I help you? I could just burble under the surface and then run, often literally, as fast as my legs would carry me through the city centre, up past St James football ground, through the park, past a&e and up, up the stairs into NICU where the world stopped turning again until I left.

She started to look like a shrunken baby, and then came home with me. Life started up again. Things fell into place, ironed out, I tried to forget, but even if I didn't, I had a very real reminder of the happy outcome. I could pick her up and carry her around and kiss her until she got fed up with it. And then suddenly I was in my third Intensive Care unit in two years. 

I didn't find anyone there. I didn't expect too. A little of my heart was feeling hardened to the testing and mostly, I knew that the one thing I had faith in didn't have magical properties or an all-seeing benevolence, reason and complex plan. She did have ten fingers and ten toes though. Having had a taste of "normality" was what drove every day into the next day. I could barely leave her side without feeling that the distance might bring us further apart not closer, so my set up vigil provided my hope. I was touched though by a little community drawn up for me by others.In absence of local family, my circle of friends outstripped any expectation and went beyond the call of duty to bring me food parcels, sit with me silently, bring me clean socks, provide a shoulder to cry on (not that I did. That would mean admitting how bloody terrified I was) and some times not leave until 3am in the morning because I refused to leave Wriggles' side. Until the point my mother arrived, and beyond that, all I had to do was mention something and it was done. If I ever needed belief in humanity and kindness restoring, it was now. They didn't do it because they had to or had been told to or believed it would get them to a better end, but because they cared. On my first mother's day there on PICU I received three cards all "by Wriggles" because no one wanted me to feel alone.

Now that is what I believe in. Love of the here and now.

My Little Princess

I don't think Wriggles is particularly patriotic. She consented to wearing a red-white-and-blue dress (it was one of the only clean items of clothing) but this photograph captured the split second before she threw her crown, lovingly hastily cut out from cardboard and stapled, on the ground and promptly sat on it.

I am not normally very patriotic or royalist. Normally I am a bit on the cynical Scrooge glass-half-empty side of the table, but since having Wriggles I have lightened my mood and taken pleasure in the small things. One of which, is people being nice to each other. Actually, maybe that is not a small thing. There are some very depressing things out there and some very aggressive events, so when a community or group of relative strangers get together for the day and bake cakes free of charge and swap stories, it is really rather magical and refreshing. It might all sound a bit twee, but having gone to a street party this weekend I am fully signed up to the Nice People club.

My parents and grandparents have long lamented the loss of community, and despite growing up in a relatively small, quiet and pleasant village, I can't say I have many memories or much notion of community. I am ashamed to say, I don't know the names of one set of my neighbours and can count the number of conversations had with with on one hand. Community seems rather lost in today, at least where I live in a city suburb. So it was a wonderful surprise to see a street filled with people making merry, with all ages represented and even sulky teenagers looking marginally less sulky for the day. Families, singletons, friends, strangers...there were all there and all sharing together. 

Now that is something to remember.

Shock

I have suffered with mental health and I have known many other people around me suffer. Some have been classed as "severe" and complex, but it wasn't until the last few days that I saw someone truly on the brink. I have seen and experienced debilitating symptoms, breakdowns in communications and relationships, lack of interest and energy in anything and an acute feeling of helplessness and no future but now I've seen the next step when it gets worse. And it is chilling and sobering.

One of my closest friends has had complex depression for as long as I have known her and over the last six or more years has bounced from psychologists, psychiatrists, counsellors, medication and various forms of therapy. Somewhere she lost her footing and the last few weeks, and in particular, since last weekend had been very bleak. On Tuesday things reached a head and also information was uncovered about the extent of what has been going on, the depths of concealment so she didn't worry her loved ones and the ritualistic obsessions which have defined her existence and either accidentally or intentionally endangered her. Eventually she turned herself to the Crisis Team. It was expected she would be admitted to a psychiatric unit or similar care for a temporary period. Whatever she said to the doctor, she was released for the night and her parents decided to come and take her home. The next day was fraught with meetings and then the act of her leaving. It feels very disloyal thinking how she veered in and out of being herself and would flip within minutes to being full of clarity and understanding to being consumed with pure emotion and reaction and would become almost violent and child-like again. It took a long time to get her to leave her sanctuary of her bedroom, which although was understandable from her point of view, was also necessary for her to move forward. It took sedatives to calm her down and be released from panic attacks, before she was driven off down South.

Those of us close to her feel numb to the level of hurt she has felt and that we have not been able to wave a magic wand for her, and this must only be a fraction of what she has been dealing with in her own mind. To be tortured and imprisoned by thoughts is very sobering, especially when they impact on your physical actions and decisions and cloud your judgement from tiny things to much bigger things. It feels almost very surreal when the situation is real, but half of what the things someone says are not "real" except in the briefest of moments. It is very sad to see someone so vivacious, intelligent and talented felled by essentially thoughts. 

It is scary to have a glimpse of what things could have been like for anyone who has suffered from depression or anxiety. I held Wriggles so much tighter the day it all came to light and have done each day since, and been so grateful I turned a corner. And then wept a little inside, that my friend had not reached out for help or let herself lean on us, the way she has supported me. It is such a strange situation; we all felt so guilty for not realising sooner, not delving, not putting two and two together...but were two and two there? Hindsight is so clear but also mixes up the elements and clouds the reality. And whatever hindsight can throw up, the important thing is the here and now: this has happened, it is what happens next that is now important.


I miss her.


I miss meeting up with her. I miss sitting in coffee shops with her. I miss her coming round and playing with Wriggles. I miss the way Wriggles' face lit up when she was allowed to play with my friend's copious bracelet collection. I miss her gentle demeanour. I miss her humour and our funny jokes and memories together.


I so badly want her to recover and yet I don't know how to help her.


I'm not afraid to put my hands up and say I probably don't have a brilliant understanding of how and what she is feeling. I know how I felt but it isn't the same because my experiences were directly related to very specific experiences. I don't have experience of sedatives being used or the particular problems she has, I don't necessarily understand self-harming and even in my blackest times, I can't imagine being that close to the edge, because I have Wriggles. Who knows if I didn't? That thought conjures up an empty void that frightens me.

It was also a very strange split to see as a parent: partly, I was shielded from a lot of things that our other friends dealt with and saw as Wriggles needed me and partly it was a small leap to be in her parents' shoes. It would break my heart if Wriggles was that poorly and I was that helpless. It was really quite terrifying to even contemplate that her perfect, innocent and beautiful little mind might be sullied by other voices muddying it and planting vicious thoughts. 
I have felt very redundant as a friend. In the old days, I would have been in the thick of helping and doing everything I could; now Wriggles is my priority and that means that both practically and physically I cannot always do everything I would ideally like to. I am doing what I can and sadly, that is not a lot. We have been told she needs space and also time with her family who will for the time being be her primary carers again like when she was a little sick child. Their baby. Hopefully they will be enough so that she will not have to be sectioned, something I know frightens her hugely. I know they will do everything in their power and more and that is a relief to know that finally she is being looked after by the people who love her the best. I know as a parent that there is no stone you will leave unturned in the quest to make your child better, whether it be from tonsillitis or depression!

It won't be an easy journey but one that needs to be taken. This is one where you can't just get off.

Breakthrough with extra ice cream

This weekend something amazing happened.

We were invited to a birthday party.

Now, this might be an everyday occurrence for many mums. But I have been spectacularly rubbish at making and keeping mum friends, my depression and anxiety cutting all ties with rationality and sending my confidence and voice deep down into a pit of despair, cutting off the sunlight. I would shrink from other mums, like a vampire from the dawn. Not at all because I didn't want to be their friend, quite the opposite, but because I would just panic. Why would they want to be my friend? I kept trying to go to baby groups, I would make myself because if nothing else my darling Wriggles has always been quite partial to "borrowing" other babies rattles and charming stranger's grannies. I don't know quite what has happened but somehow things turned a corner and bit by bit I began to talk properly to the other mums and remember their names and stop my jaw dropping the floor if they remembered mine (or at least Wriggles'-it's practically the same thing once you give birth). Then I plucked up the courage to accept invites to coffee and this week, exchanged phone numbers with not one, not two but three, yes THREE mums. And received a party invitation for my troubles.

After this feat of brilliance, I seized the day yesterday and went small-person-affordable-gift-shopping. I wrote (on behalf of Wriggles) a card and sealed the envelope in the hope that if I wanted to chicken out I might reason that that would mean a wasted card. This morning I wrapped up a copy of What The Ladybird Who Heard whilst fending off an energetic Wriggles who wanted to eat the sellotape, and tried to find a pair of leggings that didn't have any food down: a near impossible task. For someone that barely eats, all her clothes are covered in bizarre stains and trodden in crumbs.

As the time drew near I ummed and ahhhed. I felt nervous and began to look for excuses. I could see the opportunity slipping away and in a rare fit of decisiveness, grabbed the A-Z and tried to locate the party location. It was less than 10 minutes walk away. The sun had come out. I was running out of excuses. Wriggles had found a shiny box and was pacified. As long as she was still allowed to hold the box, she was happy to put her coat on. Now I had no excuse. Before the moment was gone, we left. As I walked along the road, thoughts niggled at my brain. Was I going to be the only unmarried one? Were their husbands going to be terrifying? I don't even know why these felt important things. I think the one of the hard things about mental health wobbles are the feelings of inadequacy it cloaks you in. I often have felt conscious of being babyfaced and a single parent and worry that it isolates me. In reality, it doesn't or at least hasn't so far. I have been pleasantly surprised that no ones gives two hoots if your house is magazine-perfect (mine isn't for the record, it is a scruffy flat) or Mr Darcy brings you breakfast in bed. Probably as so many mothers are battling through sleepless nights and chasing around after mad toddlers to rub together enough brain cells to care. It is so easy to forget the two things that unite most parents are their children and the helpless desperation to Get It Right whilst doubt and guilt gnaw at you every time CBeebies is switched on. 

The worries were all unfounded. We had a truly lovely afternoon, the babies all played (relatively) nicely and everyone was so friendly. I hope these are the beginnings of real friendships; even if they are not, I can't think of many ways better to spend a weekend that in the company of some Good Eggs especially when you get two types of cake and ice cream at the end.

Walking back home at 7pm (if you're going to party, you need to do it properly. I'm installing this in Wriggles from an early age) in the golden fading sun, I felt euphoric. It is such a small thing, but for me, such a big step. It felt like I had broke through a fog holding me back and hiding me from the world I crave to be part of, that I should belong to. It made me so happy to feel like I was grabbing life with both hands and loving it, rather than living in bad memories. 

Other Mums

For quite a while, I was a bit suspicious of other parents. They did everything better and had cleaner more stimulated children. They had the secrets to Good Parenting and I could never join their ranks.


Then I began to notice that they had bags under their eyes too. And odd socks. And a baked bean stuck their jumpers. And a look of exasperation when their well behaved child started up. And occasionally, said well behaved child would lob a petit filous pot across the room. I noticed that some parents looked sad, and some looked wary. Some worn out, and many just really, really looking for a friendly face and a cup of coffee. And maybe a bit of cake. No, definitely a bit of cake. And to hell with the organic, sugar-free, slimming plan.


Other parents can be a lifeline in times of need. And times of need can be anything from One Of Those Days to a true crisis point. Other parents can act as a mirror to reflect your own needs and desires and they can demonstrate understanding that many times can only come from someone who truly knows how you are feeling. They are the people that are there to help celebrate the highs and commiserate the lows. They will be the ones helping to pack up party-bags to delegating exactly whose fault was the hair pulling. Although my own parent network is very fledgling, I know how vital it is. Even if you have just one mummy friend, they can make the difference. When I was growing up, my mum was part of a strong NCT local network that gave her a circle of fiercely protective biscuit-wielding friends that still form a substantial tower of support and provided both my and my sister with lifelong friends also. 


Having like-minded fellow parents was for me tested when I reached my own crisis points, in neonatal and Paediatric Intensive Care. Whilst in neonatal I had no parent friends and was not at a point whereby I had the emotional capacity or time to start seeking them out. Practically it would have just been a bit weird, turning up to a baby group alone with nothing but a picture of a tiny poorly baby. I was however put in touch with another younger mum, just as we went home. Her baby was a term baby who had spent a stint on SCBU after birth and she was also alone in her former circle of friends, being the first to foray into the murky world of parenthood. She became my only mum-friend and a tentative one at that for a long time. However, I came into contact with many parents over the following months, mostly in the form of support workers. There were a group of women I met who directly influenced me and gave me the strength to acknowledge that I could do this. All the women were older than me and in entirely different circumstances, they only came into my life in a professional capacity, but their words touched me. Some I met just once, some handful of times, two I still keep in contact with now on a more personal level. Anna-Bet, Anne, Fiona, Mel, Bridie and Vicky, I don't think you will ever know what an impact you made on me for the better. Each of you shared one similar aspect of the early days of my motherhood that made me know that there was a light at the end of the tunnel. Be it a fellow NICU experience, other single parents, other young parents, another traumatic birth, a fighting spirit; it made me feel normal which was something I desperately felt anything but.


Over the months, I tentatively began to go into the big wide world and meet other new mums. The friendships are still very much developing but they restore my confidence in a way that nothing else can. Other mums fight as well, very hard for each other. A nurse I came into contact with on PICU who looked after my daughter saw I was struggling in accepting where I fitted into the world and doubting my parenting abilities and went above and beyond her job to try and help me. She wasn't paid for it and it was not her job description but she understood, not just my situation, but me personally. She was a world apart from me, her home life could not have been more different, but she was so protective and let me know that I was one of thousands of struggling mums. Words can make such a difference. And now I am dipping my toe into the world of parent-blogging. It started out as a personal way of processing my feelings following a whirlwind that was the beginning of parenthood, and ended up being another form of sanity saving. Of course the internet has much to answer for, but it connects you to people you would never meet otherwise, not least for geographic reasons, who make you feel that little bit more normal and able. Likewise, I am beginning to meet other mums through neonatal support groups. There is nothing like being able to sit with a stranger, with no words, but a deep connected sense of understanding. It can be like a secret language. You know too. 
Reassurance and support that you cannot put a price on.


Do Something Yummy and help out not just children who deserve a hand, bur their parents too. No one wants to suffer or to admit they would quite like a spot of help, but we all are so glad when it is there. If your child is having a rough time, you want to be mummy, not a carer. And sometimes, you need a break. Just enough to put the kettle up, or your head down for a nap. I have been in recipient of respite help before and it makes such a difference. No one ever thinks it will be them, but everyday 10 families are told their child has cancer. And I bet none of them saw it coming.

"Do something yummy because every mummy deserves some fun"