Two Years On

Dear Me-Two-Years-Ago,

Hello, it's me from the future. I think you need some help; you're feeling very alone. You think you're grown up at 23 with a brand new surprise baby, albeit in an incubator and trying to Do The Right Thing. You will. But right now the weight of the world is on your shoulders, or at least of your world and that of the little girl in the neonatal unit. 

She's doing so well, isn't she? She's growing as she should be, she is breathing air by herself. But it's so hard to relax. So many ups and downs. Tomorrow afternoon you will try kangaroo care for the first time. I know it's scary, but it's the most special thing having the warm skin and the butterfly heartbeat placed against your bare skin. Try and enjoy the pure magic of it. Weeks down the line you will crave it, hang on to every second. I'm afraid in a few days she will start requiring oxygen again which she will not be able to manage without until she is 6 months old at home with you. Yes that's right, at home with you where she belongs. Your homes will change but one thing won't, and that is that by your side is her rightful place and it always will be.

I know you haven't come to that decision yet. Everything has been so sudden, so unexpected and so many factors are up in the air. You haven't yet sorted things with work. You haven't yet sorted things with her father. You are so far from sorting housing and finances. You have been told you have to wait until her 6 week head scan which is a few weeks off yet, to see if there has been any lasting brain damage or haemorrhages visible at this stage which may affect her development and if you feel you can manage if there is. Right now you are so badly trying to do right by her, you aren't letting yourself truly acknowledge how deep your feelings are. In the very near future you will realise that actually letting your heart rule over your head is not a black and white choice. Because sometimes your heart and head are in compliance, but it will take time for the fog of your shock to subside. Be kind to yourself, you are playing catch up in emotions what you would have otherwise had near 28 weeks to process internally. Love is the strongest of them all and will give you the power to achieve what else needs achieving. Don't be afraid to love and don't be afraid of the future. I'm not saying it will be easy, but once you have love on your side nothing is impossible. Fear isn't a failing.  Listen to people, but listen to your heart. No one else can tell you the truth but yourself. 

You're so worried about being able to provide for her if she is strong enough to pull through and come home. She will be; she may need some extra support which is a theme that will crop up again and again, but it is not as hard as it looks. You think that you ahve already failed her once so why wait to see if you do again: you haven't. 60,000 babies are born too small or sick each year in the UK. If you wouldn't call each of their mothers failures, why call yourself one? It was different, that was all. You're so concerned that you cannot give her what a richer or more traditional family set up could give her. If it helps, I'll show you a secret:

Does that look like a child lacking in joy? In curiosity? In happiness? In love? Children don't care about second-hand or third-hand, about whether the outing was free or cost money and any such prejudice is years off. You can cross that bridge when you come to it; I still haven't yet but I am less scared to now when it comes. But what you need is security and I'm telling you that you can and will provide that. It's so much more intricate than you think and yet so simple. This evening, that same little girl threw her arms around my neck and pulled herself into my lap presenting me with her favourite book. She snuggled into my neck at 8pm, sleepily. Every time I think that someone else may have had that privilege my heart nearly stops. Please let yourself feel, your breed of "rationality" is so far removed from your actual life that it will do you no good to torture yourself with your perceived shortcomings. You are a mother and that is enough. I could tell you all her favourite things, her quirks, her progress, about her funny faces, her noises, her likes, her dislikes, but I'll let you have that fun for yourself.

I can promise you will never ever regret it for a second. You may be tested again and again, you will know grief and sorrow and true fear but you will also know the greatest joys and the most wonderful feelings in the world.

With all my heart,

Me-Two-Years-On

xxx


A bit of background: in the days and weeks following Wriggles' surprise appearance I struggled with the idea that I could be any kind of a parent and provide for her and briefly looked to adoption or foster care, such was my conviction that I would never be able to give her the future I had once dreamt of giving my dream "first child". The further the process got, the clearer I began to actually feel things and realise exactly what I would miss out on, and how that dreams are just that: dreams. That we can create new and better dreams and try and find a route back to our old ones through a different path. And I am so glad I stopped trying to be so "rational" and realised that there is no such thing as perfection, except possibly your own child, who is thankfully only metres away from me asleep now!

Two Tomorrow

Two. She's going to be TWO tomorrow. TOMORROW. TWO.

I can't believe it.

I feel intermittently delirious with excitement on her behalf, and sick with fear as the memories race through my head.

Two years ago, I was pretty much without a care in the world.

Today, I have a bundle of giggles who also requires a higher standard of care than other two year olds.

Why hasn't there been a fanfare, why didn't a bell toll two years ago? How can it happen so quietly, so unassuming? One day a singleton, the next a mother. One day at home, the next in hospital. And conversely, one day in hospital, the next at home. 

Two years ago I knew little of heart ache and far less about love than I would have liked to think.

Two years later I know the dizzying heights of sheer joy and pure adoration and that love is not soft, it is fierce like a tiger. I know the line of despair, terror and consuming guilt.

A little under two years ago, I bought a book roughly around the time my daughter was in NICU or possibly just came out. The Heart and the Bottle, by Oliver Jeffers. I loved his illustration style, but the book made me cry instantly. It was far more grown up that his previous works, and dealt with love and loss. 

"Once there was a girl who was much like any other

Her head was filled with the curiosity of the world

With thoughts of the stars

With wonder of the sea

She took delight in finding new things

Until one day she found an empty chair

Feeling unsure, the girl thought the best thing was to put her heart in a safe place

Just for the time being..." 

And so, the book examines how when your heart is in a safe place, say a bottle, it seems to fix things at first. Maybe at first it is necessary. But as time goes on, it dulls the world around you. You start to think less of the stars, see less wonder in the sea, and new things are left undiscovered, the world slowly drifting further and further from your island. 

After the shock, and I hate to say it, but trauma, of having Wriggles, I was very afraid to feel. I was afraid to grip any emotion head-on for the fear it would consume me whole for breakfast. All through NICU, I was so desperate to feel something, anything. I felt protective, I felt fiercely protective, but I also felt numb. I felt like I was in a bottle, looking out clearly on the world but with a sheet of glass between us. I could shout but no one could hear me. They could see me, and waved cheerfully. But I could only stand, pressed up, and wish to be free yet afraid of what was out there. I wish I could say that when I brought Wriggles home, the spell was broken. I think very slowly it began to break, but I still felt so fogged. I knew I was in love, but who knew love was so painful, so fragile, so vulnerable and so closely entwined with a deep seated guilt that threatened to destroy things? 

I can't pinpoint when the moment was that things changed, and I found the key to unlocking things. In the book, the girl finds a little friend on the beach who easily unplucks her heart for her. In my life it was not so simple. I was slowly emerging back into the world and allowing myself to sink completely into a devout love with my child, free of any terror or hauntings of the past months of NICU or birth, when she abruptly ended up slap bang in PICU. I knew then what I had to loose, once she was there and it set a terror deeper than anything when I realised that the most precious thing to me might be ripped away again. It was so clear how much she meant to me then and that maybe I hadn't been being true to us both, when I had felt too afraid to love her without abandon. Those days until she was out of the critical period were the worst I have ever felt. Going to sleep with no snuffler by my side felt so bleak, as if the world had stopped turning and lost all it's colour, smells and sounds. I felt bereft, even walking to her cubicle, without her by my side. That moment, weeks later when she came out of her induced coma and I could hold her again was in glorious technicolour. Oh she was floppy, she was pale, she was weak. But she was mine. Mine, mine, mine. I will never ever ever let you go, baby girl. 

Of course, it wasn't as simple as that was that. Having my baby back with me, being back with her all the time was the most wonderful feeling ever and affirmed how much I had given over to her, but when we got home I struggled to deal with how things had gone and fell deep into a state of mental unrest coupled with cripplingly guilt that I wasn't making the most of things. I would walk along and cry for no reason, convinced that however much I loved her it would never be enough to make up for her little life so far.

I don't know when that stopped, but it did or at least got to the point of being manageable and I was able to tell my inner jimminy cricket to sod off from time to time. I began to go to baby groups again, to venture to exotic lands like The Park, The Seaside, Coffee Shops. And suddenly things improved. I began to have conversations with fellow mums and not feel a fraud or a headcase.  I saw my baby for being my baby, not a fragile being with too many miniature scars. I began to see that there was a chance, no a fact, that she loved me back. Last birthday was still a struggle. I was doing better but nearer the date became flustered with too many memories and kept nearly blacking out. This birthday, I think I am better. I am excited. I have done present shopping. I have blown up balloons with a faulty balloon pump: now that is love. I'm wearing my heart on my sleeve now most days. It's frightening because there it is, right there, free for the taking. It's not protected, it could easily be broken or damaged. But it's better than locking it away, isn't it? Better than locking me, us, away. I think. I'm not sure every single day or in every single situation. But right now I am.

Happy birthday in a few hours, baby girl.

Dear NICU

Dear NICU,

I am angry. So angry. I know I shouldn't be but there are so many things I want to say to you. Maybe it's not healthy nearly 2 years on but I need to get this off my chest.

You denied me my role of motherhood. You took away my basic rights as a parent. You can SAY I'm still the mum, but how was I really being a mum just sitting? Sitting and staring. Watching and waiting. That's not parenting.

Do you know how demeaning it is to ask for permission to touch my baby? Not even hold, but touch? And when told, albeit gently, no not now, no not today, how you snapped my fragile heart and stamped over it before brushing it aside for dead.

How patronising and sad it is to have cuddles put on a rota, as if it was another chore to tick off. 15 minutes a day; 3pm after cares.

How I felt as small as a gnat, no smaller, as worthless as a flea because I wasn't breastfeeding. I couldn't even do that and you didn't care. You didn't even say, don't worry because it wasn't important as long as my child grew.

You smashed every one of my dreams and preconceptions of my first child, my baby I will never ever recover or now live. My innocence was lost within hours. It doesn't matter if I go on to have another baby; I will never get those hours back with her.

You were rubbish at sharing. All those weeks and I could only visit. Every night I had to leave. Every night I had to leave my baby with someone else. Someone very kind and very skilled but a stranger. Every night I had to accept that someone else would comfort my baby because I couldn't be there to do it, and might get to hold her precious hands while I wasn't allowed.

You had the most important job in the world looking after tiny vulnerable beings that were each the centre of someone's universe and yet you had no compassion. Day in day out some babies would get sick. Worse, some might leave this earth. Why didn't you do something? Something more?

You weren't me. You might have cared for my baby but you will never love her and you took her from me when she needed love the most.

Kind regards,

but maybe not that kind,

Mouse

ps. By the way, thanks for y'know, saving my baby's life and looking after her. Thanks for giving her the chance to live so we could both be happy today. More than happy. Um. Maybe you could just ignore all of the above?

*screws letter up and throws it in the bin*

Sigh.

Then and Now

Then.

 

I miss looking into your screwed up squished "term" face, seeing glimpses of features yet to come.

I miss your snorting and snuffling through the night: you sounded exactly like a hungry hedgehog in the undergrowth!

I miss being able to be still with you; just watching and waiting for nothing.

I miss your napping, curled up on my chest. Now if you consent or are allowed to sleep on me, you are more lolloping starfish than a little dormouse.

I miss your whole tiny hand being still almost too small to hold just one of my fingers-and I have tiny hands myself.

I miss, in a wierd way, you grabbing my hair and getting tangled up in it. Things I thought I would never say.

I miss putting you down in one place and knowing you will still be there, albeit a bit lopsided in two minutes time!

I miss at least two naps a day.

I miss that utter dependence on me.

Now.

I love it when I carry you around, and you cling on tightly with your fists and wrap your arms around me like a bushbaby.

I love that you have such a personality and a huge range of expressive faces. Even your stuck out bottom lip cracks me up.

I love that you give cuddles back. When you reach out it is The Best. Thing. Ever.

I love it when you try to pull yourself up by pulling on my trouser legs.

I love it when you "bring" me a toy (normally thrusting it up my nose) you want to play with, or better still, want me to play with with you.

I love it when you copy things and do actions. You are so sweet when you hit yourself on the head with a hairbrush ('brushing your hair').

I love seeing you get excited: bet it about the swings, a train, Mr Tumble or coming home after a long day.

I LOVE it when you blow kisses.

I love it when you curl your fingers around mine.

I love that your understanding is growing each day.

I love that you are such a daredevil and scared of nothing (except possibly eating and our friend Leila's hippo torch).

I love it when you are with other little children and I can see you trying to work them out. And then trampling on them-must sort that last bit out.

All in the Mind

The human mind is incredible.

 

It is such a sophisticated thing and the most sophisticated thing is, you can't even see it. You can see the brain yes, and really clever people with whizzy machines might be able to see cells and neurons but what does our mind, our thoughts, our intellect and personality look like? Does it look different if we are ill or sad?

Mostly, the mind is incredibly clever and benevolent.

Sometimes it is also incredibly cruel.

You only have to turn on the news to see what human thinking and consequently actions cause sometimes. It might be one person or a collective. It might be one spark or a long thought out plan. And less newsworthy, people out there every day struggle with mental health when their mind is not 100% their own. It might be fleeting; it might be lifelong.

After my recent wobble, I have been feeling so much better for having some time off work with Wriggles. It really helped me reaffirm myself as Alpha Mama (alright, then: a mama at least) and in that month, I did more mum-friendly and social things than I had in over a year. I returned to work as I knew then that redundancy was imminent in around 6 weeks and figured that I could do that, knowing there was an end. I hadn't given up the idea of continuing working if something else came up and I could find appropriate childcare and I was getting maybe a little cocky thinking I had put the worst behind me. Largely, I think the "worst" is behind, just the tough bit that is easy to forget is that there is no magic moment when your feelings go away in a puff of smoke. Nothing has to happen for them to creep back out again from where they have been lurking, but sometimes they sneak up unexpected and uninvited as if to remind you who was once boss.

I had a silly hour or so today. It wasn't quite a panic attack, but was unsettling to say the least. I had a rare few hours apart from Wriggles; we had a lovely lunch together (eaten: one fromage frais, a dollop of banana & custard, several rice cakes, the corner of my panini and some multigrain hoop-type-snacks) and I dropped her off at the creche. She barely looked up, having befriended one of the staff instantly. I kissed her, once, twice, needily three times and still she didn't flinch. Off I slunk, with my tail between my legs and my metaphorical ears wilting.

She doesn't love you.

The thought hovered in my head. I furiously brushed it aside.

She doesn't care.

She's just independent. And sociable and friendly and a toddler for chrissakes. They all go through mad phases.

You keep telling yourself that. How do you even know she realises you're her mother?

All babies know their mothers. She would have known my voice, my smell. She settled with me and fell asleep in my arms.

She was born early not long after developing those senses and lived in a plastic box for two months.

That didn't stop me loving her and telling her I loved her. And once she came out and came home, I didn't stop holding her and being as mothering as I could.

I'm not talking about what you feel. She wouldn't care if you walked away now. If you went and never came back. She'd be fine. She'd still smile and giggle and laugh. How do you know she would miss you?

How do you know?

Would she?

I wish sometimes there was an off-button to silence minds.

As anxiety and growing hysteria with a growing conviction I was unwanted swept over me, I could feel myself getting light headed and shaky. Walking past a window confirmed I was as white as sheet and looked peaky to say the least. I honestly thought I was going to collapse with the intensity and was terrified that after all the good work of being able to separate mad brain from normal brain that I was falling back fast into a barren and bleak pit of despair whereby I couldn't control my grasp of my little world.  

Thankfully, my more conscious and rational self came back not long after it had left and banished any such thoughts, focussing firmly on what was happening right that second (wandering round IKEA, a task impossible with a small noisebag) and the knowledge that soon I was going to be back with Wriggles and she would be happy with that.

And indeed, she was. I picked her and smothered her with kisses and she happily held my finger on the metro home. We "fed" her toy cat rice cakes on the way back and she squwarked with mirth. I was once more myself and let out a sigh of relief and contentment. Now, surrounded by my things with my daughter sleeping softly in the next room, I know all is well. 

A blip. 

A silly blip. 

Philosophically, you could debate the notion of love, relationships, parenting, nature and nurture but I know one thing: I have a very happy little girl and happy little girls do not stay happy without love. Little girls who do not care are not full of smiles and contentment. They do not blow kisses or offer to share dribbled-on breadstick. They might scream and try to climb in the bin and ignore all authorative "No"s and happily climb on anyone's lap, but that does not mean indifference or dislike.

I've got so many happy memories with her, and I hope she has too. I know memory is far less sophisticated in the very young, but I hope somewhere in there, there are recollections of moments prized. I'm not, in them by default as the only parent there day in, day out I hope but because I have earned my place and my reward of my daughter's affection as I have loved her to the ends of my ability and further every day, and done the best I possibly can by her. I may not be perfect, but I will bloody well try to be for her sake. (Allowing bin-and-toilet-climbing excluded of course. That will stay not permitted, however many tears it produces).

Lost

Part of the shock from having a new baby is that suddenly you go from being well, you, to 'Mum'. No one can remember your name except from the bills company and unless you are attached to your new bundle, people seem to seldom recognise and acknowledge you. Of course, part of this is lovely. There is a certain inner glow that comes everytime someone says "So-and-so's mummy" and you think, yes! Me! I am so-and-so's mummy! After all it is such an important job, why wouldn't you want to tell the world? But somewhere along the line, there are days when it grates on you. Days when you think that it would be nice if just once someone at least pretended they knew your name once. And then comes the guilt. Why would you want to do or be anything that is not 100% mummy?

Personally I think this guilt is nothing more than a reaction. Wanting something for yourself does not mean you are neglecting your child, as long as you are not dropping their care. Wanting to reclaim some of your personality or maybe even a hobby (there is more to life than folding tiny socks...? Really?) or a social life does not mean you are trying to shake off being a parent. I think a good parent is one who has a healthy sense of self; if you heap everything onto your child that is suddenly a lot of expectations for that child and at worst, a chance resentment might build up. of course we all have periods where this comes and goes, circumstances, mood and even mental health fluctuate. We cannot be perfect, or striving to be sort-of-perfect all the time.

For myself, having gone through difficult periods of neonatal and a sick child, I am beginning to feel this even more keenly. I don't want these times and grief to describe me or settle my identity. As a single parent, I want to be a strong person and a good mum. I want this blip in coping I am having to be nothing more than a blip. In these times, Wriggles become like a benevolent force or shield, saving me from seeking deeper. She is the reason that when I feel bleak that I do not feel like contemplating removing myself forcibly from the equation. She is like a rock in a turbulent sea to cling onto. I feel naked without her, like I am exposed and that there is nothing to look back to. She is undoubtedly the most important thing, but I want to be able to claw myself back without relying on her alone. I will always do it for her, but I need to have a stronger sense of self again. I know it is in there, just hiding. A bit lost. I am primarily Wriggles' Mama but I am also a young woman who has a range of interests, passions and dislikes. I don't believe that finding other things equates to losing some of her care or giving up some love, more that it stretches things to include more. Yes, I am changed since our experiences but this is time to stop just dwelling and start doing. I owe it to my daughter and I owe it to myself. I want to stop saying the right things and start doing the right things. Whatever they are...

 

Age Appropriate

Now in the grand scheme of things, this isn't something very big at all, but it is something that sometimes frustrates and throws me and it does cross my mind that this may be a precursor for the future if we were unlucky.

I'm talking at "baby classes" or baby groups which are segregated by age. I do, in fact, think it is sensible to put an age limit on classes and to group children of a similar age and ability together so that toddlers don't squash newborns flat and newborns don't drive toddlers round the bend with wailing etc. However my irritation comes when your child does not meet all the developmental milestones associated with age and such groups become barriers.
 

I like baby classes as it gives you a chance to meet other parents and have an activity, and as a lot of the mother and baby/toddler groups in my area are unfortunately either on days I work or terrifying. I would love to go to more of the library groups but they all clash with me coming home from work, as does many of the nearby Sure Start activities. I have tried to keep going to a Sure Start group organised nearby, but always feel a bit of a sore thumb as it was primarily set up for teenage parents and though they now welcome others and whilst I may be younger than some, I am not teenage at nearly 25. This problem also annoys me when it comes to days out which charge by age. I resented paying full price for soft play for example at age 1 when Wriggles could not yet even sit unsupported, let alone cruise or walk as the centre assumed 1 year olds do.

Urgh

"Mummys aren't allowed to be ill." My Dad

They certainly aren't allowed to be ill when there is just one parent, an absence for 300 miles of family and your fall-back best friends are on holiday in London or Canada. Yesterday, I was caught utterly short by this predicament.

I have been exceptionally lucky and only be truly knocked out twice so far in my daughter's lifetime, but they are times I would really rather not repeat. When there is literally no one to step in, it is really tough. Not wanting to sound like a whinger, but surely if there was a benevolent force, single parents would be made immune to all bugs, viruses, lurgies and exhaustion at the pinnacle point of singledom?

Breastfeeding, by a Bottle-Feeder

Oh, the vicious debate of motherhood. Breast or bottle.
It's a choice that in some circles can define you and your style and integrity of motherhood and parenting. I am always very surprised at the relatively small numbers of breastfeeding mothers given the promotion of it's well being for your baby and advice of organisations like the World Health Organisation.
Then again, I am one of the non-breastfeeders, although this decision was not deliberate but a result of some complicated circumstances that ended up with my milk drying up before I came to a firm decision. I am comfortable with the fact that I bottlefeed and it has suited me and my child as it means that as a single parent I could return to part-time work confident my child would still feed correctly and as she has grown older, her health requirements are a little outside the box and bottle feeding has allowed us some breakthrough with oral motor skills and a way of giving her a more suitable formula and medication.

Going Home Outfits

Going Home.

The beginning of the adventure.

There really is nothing like it, the dawning realisation that you are being let loose with a real life human being and no one is going to check up on you. Unless you have a really nosey Health Visitor.

Such an occassion needs a special outfit. It gave me something productive on a frivolous level to think about when sat in Special Care in the time leading up to discharge.

 Wriggles did not actually go home in her official New Home outfit. Although by the time we were ready to leave she was a whopping 5lbs 4oz, she was a titch and all the alleged 'tiny baby' and 'up to 5lb' prem baby clothes hung off her. She must have really heavy toes or something. Her new home outfit was going to be a white babygrow covered in red flowers. As it was, we went home in a plain white babygrow that was donated by SCBU and a little yellow knitted cardigan. As it was November and freezing, she had a furry white sleepsuit with ears on the hood, like a tiny polar bear. It meant something as I had bought it; so silly but with all the presents we had very kindly been given, all I had contributed was some nappies, a changemat and some Infacare. So this felt like I was making my mark. Her toy who had lived by the incubator with her, Mouse, also had a new hat for the occasion, off an Innocent smoothie bottle. Mouse stayed with Wriggles in the car seat to make sure she wasn't scared.

Have a look over at Dear Beautiful Boy for more first outfits as part of the new pretty.little.things linky. (I cannot work out how to add a badge yet!)

Ready for the Off

Special Delivery! Mouse looks quite a large toy, she is actually the size of my hand, legs included.

Too exciting....bether have a nap!

Growing up: Wriggles in Review Rooming in and Going Home

If SCBU was fraught with mixed emotions and sadness, rooming in was sheer elation. It marked a very significant point in our journey: 1. home time and beginning of my true journey of parenthood and 2. the first private moment with Wriggles since the very first moment of birth, (which to be honest was not great as I was trying to speak to emergency services whilst administering CPR whilst holding her in the crook of my arm still attached via umbilical cord in a state on intense shock).

The nurses had tried three times to leave Wriggles in air to test whether she was dependant totally on the oxygen. Unfortunately she was, and her sats would dip to worryingly low levels quickly without it. And this was without energy consuming activities like feeding! So the oxygen tanks were ordered and on Saturday 13th November, exactly two months old, I moved in to the parents flat with my overnight bag and a jittery sense of excitement. It was bizarre but just what I needed. Being on our own was bliss. It was such a relief to be able to cuddle her for as long as she would tolerate, feed her on demand and say whatever I wanted without someone listening it. And best of all, it was how I imagine! I fell in love even further and it confirmed that my deepest wish was to have my baby with me forever. The weekend went smoothly and on Monday we were officially signed out and free to go! I was slightly nervous; being a mum in hospital was one thing but home with no one to ask advice of right away was another. Plus she was on oxygen, increasing SIDS risk and everything had to be super-sterile as the risk of germs to a premature baby are well, risky, and even more wobbly to one on oxygen with Chronic Lung Disease.

I think unstrapping Wriggles out of the carseat in my flat is possibly one of my proudest moments to date. It officially marked the end of SCBU and the beginning of complete Independence. I kept expecting the hospital to ring up and say there had been a mistake, but of course they didn't. Everything felt such a novelty being at home.

Later that day, one of the community nurses came out to check we were settling in fine and to go over any questions about the oxygen cannisters. Someone would visit twice a week to check her sats (to ensure they were 94% and above) and weigh her weekly to make sure that she was still growing at a suitable rate, as having weaker lungs meant that much more energy was diverted into breathing rather than being a baby. Wriggles settled in very well. So well, she rapidly went for a nap. Seeing her in the moses basket, dwarfed, was a lovely moment. It was so homely and cosy, and no-one had wanted to take her temperature and count her respiratory rate for at least 24 hours! Oh dear. That meant it was down to me.....

My Letter

Dear Me,

It's ok to have a bad day everyone-everyone else does.

It's ok not to be perfect. Who have you met that is? Brilliant, yes. Perfect, no. Your mum was not perfect. Your nanny was not perfect. So why do you have to be?

A good family is not always two parents. It is a loving household.

A good home is not a big house (by the way, you will not live in a council flat forever)

Few people want to go to work.

Everyone has a tough time sometimes.

Tomorrow is a brand new day.

You live in a happy house. 

You have a happy and contented and clever baby.

So you must be doing something right. That means that you can relax.

Love from,

Your more rational brain 

x

A Confused Mummy

Today I am a confused mummy. Well,  most days I am a confused mummy but today I am struggling with some of my feelings.

I wonder what it is like to have an "average" baby.

I wonder if there is such an encompassing thing as an "average" or "normal" baby or experience of having one.

There are daily reminders that I have a premature baby who has had some struggles. She is brilliant and amazing and as feisty as the next temperamental feisty madam but as sole parent and carer I am feeling a bit swamped at times both with all the information I have to take on board and all the running around to appointments I still have to keep. Is this normal?! I frankly have no idea any more. 

Wriggles, or her new temporary nickname Noisebag, is a little over 16 months and 13 corrected. To date we are currently under neonatology, paediatrics, neurology (luckily her consultant paed doubles up as this to reduce clinics!), dieticians, physiotherapy and are awaiting the referral from speech and language. Thankfully we have now been released from community nursing, respiratory and social work, (which we were automatically under as she had spent a certain period of time in hospital so you automatically get a helpful form-filler-er, not because I am incompetent; at least that is the information I was given....). We also have to attend very regular weigh-ins as Wriggles/Noisebag still generally refuses solids or gags about 70% of the time and as I have had a few blip-y moments along the way, I have to report every now and then to the GP and Health visitors to affirm I have no intention of jumping off a cliff or do not wander about Sainsburys wringing my hands and howling for England. My HV has decided that obviously it has all come about because I do not regularly attend infant massage groups. I can tell her that I have no concern about my bond with Wriggles but am just exhausted from weekly hospital visits until I am blue in the face but she still keeps turning up at my front door with a grubby plastic doll and sunflower oil trilling about the benefits.

 At present, excepting the weekend, every day I am not at work, I am attending an outpatient clinic for Wriggles, ferrying around to appointments or pacifying a nude Noisebag in the community scales at the Postnatal Centre. Now time is moving on, we have started receiving invites for groups of "additional needs" children also, which gives me very mixed feelings. I do not see Wriggles as having additional needs. Lags/delays yes, I fully accept that, but additional needs? She doesn't need extra care or specific skills to look after her at present. She might be doing things at her own pace but so far there is nothing I think she won't do and as far as I am aware this view is shared by the doctors. It really is a hard one; obviously I wouldn't give two hoots if she did need extra care and help, as she is my star and I love her unequivocally. I don't want to seem selfish as I am very aware we are lucky to be in 'the system' and in an area where there is a range of activities for children of all stages and have some professionals that go above and beyond their jobs. It is great that there is help to nudge her in the right direction and iron out some bumps as they show up, really it is. Honest. I'm sure if we didn't get these opportunities then I would be on my soapbox grumping about exclusions and worrying frantically that she wouldn't catch up or ever eat more than a bit of mashed banana once a month.

The "problem" if indeed there is one and I am not utterly crackers, is that when we go to a "normal" Mother and Baby group, I still often feel like I am from another planet and when we go to a "special" group I feel a complete fraud. Throughout year one of having a little creature, I spent the first two months in hospital followed by three months as a hermit with a baby on oxygen in the winter months when RSV was rife and my road was closed off due to snowdrifts and ice. There was then a marvellous hiatus of a few weeks when I began to go out and about, had more visits from friends, began to wean her with success and began to address the impending return to work. Then we abruptly wound up in intensive care and spent the next six months being in and out and in and out and in and out and in and you get the picture. Thankfully things have calmed down after birthday numero uno and I have deliberately made two term-long booking at baby groups on my days off to make sure that we get out, socialise and do normal things between the dreaded appointments. We have been for coffee with mums and babies and began to find our feet on days off together and it is a teeny weeny bit scary but marvellous. Tentatively, I have even told the 'story' to fellow mums I see, against my HV's 'advice' that I will scare them off and they will avoid us-so far this has proved to be utter codswallop and no one picks friendships in this way, especially given that whatever has happened, what is happening now is that we all have increasingly chaos-inducing mess-making becoming-independent darlings/monsters/I-could-have-sworn-she-was-a-tiny-baby-only-yesterday's and all feel like a bit of a joke every now and then even with a beautiful house and a Mr Darcy lookalike husband. I just wish there were more days in the week, or that no one had to work, to be able to spend more time doing this and less time sat in the waiting rooms clutching medical notes. I miss the year I lost out on swanning around to groups and gazing into my baby's eyes as it feels like I spent a lot of it sat anxiously at a cot-side in hospital.

I know in my heart of hearts that most people feel like this. So many of us are torn between mummy duties and well, the rest of life. Faced with the media, literature and swathes of advertising portraying Perfection, all parents, all people stumble around trying their best and adjusting their ideas like crazy to find their own corner of reality.

The main thing is I have a very nice baby and generally, life is pretty good.

So my new New Years Resolutions are: 

1. spring-clean brain

2. stop grumbling
3. look forwards not backwards (you WILL trip over or walk into a proverbial lampost)

Growing up: Wriggles in Review!

It's that time of year again, spring cleaning my frankly horrific flat. In a delayed New Year state of reminiscing I have also been getting very nostalgic, not least as I've been boxed up grown-out-of baby clothes and coming across things still packed up from the last move, in April 2011. So to start the year off (again. Yes I do realise it's now 7th January not 1st) I am looking back at Wriggles' life so far and how we came to this point where we are.

The past 16 months have been very high and low. It has been a real struggle sometimes, so completely not what I expected with your first baby. I'm pretty sure this is true for every new family, but on top of this I have emerged with a wealth of medical knowledge and can hold my own in a doctors round. My mental "fog" is now much clearer than it has been. I'm not sure whether the past muddle has been PND, Post Traumatic Stress or a mixture of both, flitting smoothly from one to the other, but it has snatched memories I will never get back which makes me very sad. I am proud of where we are now: not least because I got here in the main part on my own.

As I have been clearing and sorting, I've been reflecting on what physically is truly precious to keep. Answer: not much. However there are some special things like any Mummy that I will treasure forever. Favourite tiny outfits; cot sheets that smell of baby, or at least baby scented washing powder... My most treasured possessions of the physical variety stem back from our time in Special Care. I do have things which mean a lot pre-Wriggles and more recent things, but the one thing I would be bereft of is a pink box (above). This was collected whilst in SCBU and the box and yellow diary were gifts from Tiny Lives, the charity attached to our unit that fundraises for life-saving new equipment and provides vital family support. 

In this treasure trove are the following: diary of our stay, Wriggles' hospital band, my hospital band, the information sellotaped to her cot, some prem-baby socks never worn, her blood pressure cuff, the photograph that I slept with all the time she was in (so it was the first thing I saw in the morning and the last thing at night), the probe which conducted her oxygen sats traces, her first dummies and her first (well not literally first; replica of) nappy.

It is so easy to forget how small she was. Born at 1090g (2lbs 5 and a bit oz) at just under 28 weeks gestation, she was not a lot bigger than my hand. Maybe head to toe she was two small hands long, maybe just under. She was, and this is crass to compare, about the size of a handpuppet. I don't know why it is so desperate for me not to forget, and we all know size isn't everything, but these physical reminders bring it back like yesterday. Our journeys make us who we are, and SCBU strongly shaped the early days of our lives and later ones two. Any ongoing issues now are put down directly to prematurity, so these objects from the 'beginning' are very precious for me. They make up for the absence of what I ideally wanted for my newborn. I do have some happy memories of SCBU, first cuddles, brief attempts at kangaroo care, days spent by the incubator, watching her grow and the privilege of seeing what would otherwise be a developing foetus but it is the stark reminders of the reality rather than the New Baby! cards which mean much more to me.

 

Images: 1. first dummy next to standard 0 months + dummy 2. first nappy next to newborn sized babygro, which finally fitted Wriggles somewhere between 4-5 months! 3. Look how far I've come!

My other precious object is not in the box because it is in the photo-album. It is the first picture ever taken of her, in NICU (Neonatal Intensive Care Unit) on the night of her birth shortly after she had arrived at the unit from a&e at a different hospital. She is battered, bruised and bright red. Her skin is see-through and still smeared with blood, only one eye had opened and there is a slight perferation to her chect. There are ECG leads on and a tube attaching her to a ventilator. It is not a pretty picture. But I love it. It gives me back what I wasn't there to see. I couldn't hold her hand but it does give me that piece of history to hold on to.

Motherhood myths

So much for resolutions; I was fifteen minutes late for work arriving with unbrushed hair and sneaking my toothbrush in my handbag to quickly do en-route. I thought things were supposed to get easier as baby got older! My "baby brain" seems to be disintegrating at an alarming rate.

As life plods on and Wriggles grows up there appear to be a wealth of things creeping out the woodwork that you either don't get told about or get brushed under the carpet very quickly.

1. The birth of your child is the happiest day of your life

This is my personal bugbear as unfortunately Wriggles' birth was a very traumatic event for I think, both of us. It was one of the worst days of my life as I had no idea if my baby would survive let alone unscathed and according a midwife full of cheer, I was very lucky to still be there too. I gave birth alas with no medical assistance as it came very quickly and had to resuscitate my daughter prior to the arrival of the paramedics before being rushed to theatre myself. I only fleetingly saw her the day after, did not hold her for days and only got skin to skin at a month old. Some jolly day that birth was then.

2. Breast is Best

This is controversial, and I'm not actually disputing. It is best. I am convinced of that fact and stand in awe of mothers that breastfeed and express, whether for a day or a year or longer. It is a skill I never have had. What I do ever so slightly wish though is that formula was not referred to snidely by some people. As my child was premature, I don't regret (mostly) that she was fed on formula as it was a specific recipe designed to meet her needs she had missed out in utero. It also gave us the opportunity to take part in a medical trial, trialling a new formula for premature and low birth weight children which hopefully will make the road smoother for future parents. As a non-breastfeeder I can't comment on whether it was easier bottle feeding, but I suspect bar any physical pain and mastitis, feeding any very small 'want it noooooooooooow!' infant is very very very exhausting. Why do they want to feed excessively small amounts every fifteen minutes? Why 4am? Why?!

3. Mothers will instinctively know what their child wants and needs

Well, this is true I would say at about 6 months into it if you are lucky. Either that or I am incredibly unintuitive. Poor Wriggles. I found the early days like wading through a fog with a blindfold on, desperately fumbling with an unerring sense I might be doing it wrong and subjecting my poor child to misery. I doubt this was true, but it felt like everything was a stab in the dark and making a decision came down to a case of whittling things down. Every vomit seemed a damnation of my parenting ("Oh that'll be reflux!" trilled a GP only about eight long months later) and every exploding nappy up to the neck felt a punishment.

4. Cliches.

Most of the cliches are true and yet no one seems to appreciate it when you have had three minutes sleep for 4 weeks running, could pack a suitcase for a family of nineteen under your eyes and cannot remember the concept of matching socks let alone find any. Birth hurts but no one wants to hear after it happened, you love your child uncontrollably but people get bored after the ninth hour of you waxing lyrical about nappy contents and you do forget everything, not that your boss takes that as an excuse why you photocopied everything upside down... The worst one is exhaustion. Even that word does not sum up the real feeling of it when your limbs feel like a ton of bricks and if you admit it, you're likely to be met with a jolly "Oh it can't be that bad!". As you gravely grip a cup of super-strength coffee and dream of lie-ins (are they a myth?) the whole world appears to be tripping around on roses and yet you feel like death. Except you don't have time to.

5. Life is never the same

So this one isn't a myth. But you don't appreciate in until your life is upside down and doesn't appear to be re-turning anytime soon. In fact, it seems to have shifted to another orbit entirely without consulting you first. Once your newborn comes home with you, everything revolves around them, and rightly so. At 16 months, I have forgotten what life used to be like and it is only now I am beginning to think about reclaiming a tiny tiny bit of 'my' life back, far less doing anything about it yet. That might be next years new resolution. The practical details (no, I can't come to the pub at fifteen minutes short notice/take the baby to the restaurant and keep her quiet under the table/etc) and immense and overwhelming at time. Everything has to military precision otherwise it all falls apart, normally in public when favourite Mouse has got misplaced, you ran out of milk and your soup has been kindly upturned on your lap. I have a sneaking suspicion that my childless friends look on in wry humour, like I did I must admit, thinking that will never be me. I will have a perfect pink-cheeked baby who will quietly follow my instructions as we travel around going from coffee shop to quaint bistro... wake up! There are days when I really wonder what is worth what; is working work it, is trying to do a gazillion (I wish!) stimulating sessions worth it, it is really worth dredging around playgroup to playgroup to find one that doesn't make your toes crawl? (I did find two lovely groups for the record) As a singleton pre-child, you never imagine salvation to come kneeling in a draughty church community centre with hair sticking up and yesterdays food-stained cardigan still on and comparing notes on lack of sleep. But the flip side to this, is you never imagine the pure joy a gummy grin in the morning can bring, how a cuddle can pierce your heart and the privilege of watching a little person develop and become themselves in their own right. So apart from work, I haven't actually yet had a period of time apart from my daughter? Frankly I don't really mind yet. The hours I spend with her make up for it all. A little hand on my knee can miraculously melt away the frustration of the previous hour, like nothing else. Not even kitkats can do that...