For the second time in few weeks, we have waved goodbye to hospital and thankfully shut the front door and collapsed on the sofa back home (...

01:08 I can't sleep. In two hours I will get up and turn your feed off and swap it for just water. At 7 o'clock I will get up ag...

Some days I long to see you run off as if in flight, with the crowds of other children. Some days I long to see you slurp up a drink noisi...

It is coming up to year since we got an official diagnosis through for Wriggles and has been playing on my mind quite a lot. I rather wish i...

This week, I prayed for Friday to hurry up. Not that weekends are generally different to weekends in terms of no extra respite; I've j...

Unless you live in a cave, you must know today is the day before Father's Day. Or maybe I just notice it more as a single parent, pain...

This week I've started many posts and not finished them as the words just ran out. There is lots I want to say but much of it is go...

Yesterday we had a respiratory follow up at the hospital Outpatients clinic. Although we have been busy with home visits for physio and a sh...